by e-Patient Dave | Jul 4, 2010
How fitting for the Fourth – a year after our Declaration (see below), I just received my renewal notice for the Society for Participatory Medicine. Here’s a Doctor’s Channel interview, posted a year ago today, in which Society co-chair Alan Greene...
by e-Patient Dave | Jul 2, 2010
Over 50s lead dash to the internet: “The latest figures on new internet users in the UK have shown that people aged 50 or over made up the largest social group to join last year””: more than half of new users. As the article says, “Don’t...
by e-Patient Dave | Jul 2, 2010
This week the Department of Health & Human Services (HHS) introduced Healthcare.gov, a consumer information website mandated by the Affordable Care Act (aka the health reform bill). A video of the introduction meeting is here. The site is fabulous; HHS Chief...
by e-Patient Dave | Jul 1, 2010
As we adopt new technology NOW is the time to think strategically: “As I make my next move, where do I end up? How am I positioned for the next step?” Patients have a lot at stake in adoption of Health Information Exchanges (HIEs). Chilmark Research has...
by e-Patient Dave | Jun 30, 2010
Earlier this month I wrote that the OpenNotes project had kicked off. It’s important – if you haven’t read about it, please click that link. My primary physician and I are participating, but candidly I didn’t expect to get much out of it: as I...
by e-Patient Dave | Jun 27, 2010
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.)Â Not only are statistics often misinterpreted; even when they’re correctly understood,...
by John M. Grohol, Psy.D. | Jun 26, 2010
The e-patient movement is so real that in April the National Library of Medicine had its first ePatient Conference. Yes, that’s what they called it. The event is covered on the inside front cover of the current Medline Plus, including Society co-chair e-Patient...
by e-Patient Dave | Jun 21, 2010
Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He’s a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went...
by Susannah Fox | Jun 17, 2010
In May, I spoke at the Chronic Care and Prevention Congress about my most recent report, “Chronic Disease and the Internet.” I talked about the social life of health information and the internet’s power to connect people with information and with...
by Susannah Fox | Jun 16, 2010
Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you: His own post on Embargo Watch: “More thoughts on ASCO: How the embargo policy can...
by e-Patient Dave | Jun 15, 2010
It’s bonanza time for people intrigued with the OpenNotes project, which we mentioned Saturday. While looking for something else tonight, I ran across this, about OpenNotes, from December: “Concern that sharing information with patients may cause sustained...
by e-Patient Dave | Jun 14, 2010
It’s widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said “Over my...
by e-Patient Dave | Jun 13, 2010
Todd Park is the “entrepreneur in residence” (aka Chief Technical Officer) for the US Department of Health & Human Services (HHS). He’s an awesome (and I mean it) speaker, articulate and inspiring. Watch his 9:39 talk at O’Reilly’s...
by e-Patient Dave | Jun 12, 2010
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar – Kramer...
by e-Patient Dave | Jun 11, 2010
Tom Van De Belt @Tom_Zorg20, Lucien Engelen @Zorg20 and others have published a nice “line in the sand” article in JIMR (the Journal of Internet Medical Research), surveying the scientific and “gray” (Web) literature to collect definitions of...
by e-Patient Dave | Jun 11, 2010
I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being...
by Gilles Frydman | Jun 9, 2010
This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...
by Susannah Fox | Jun 8, 2010
I think conferences are deeply affected by the spirit of their host city. San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and...
by e-Patient Dave | Jun 7, 2010
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...
by e-Patient Dave | Jun 6, 2010
A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
The Killing of Brian Thompson was AwfulDecember 30, 2024
Recent Comments