Search all of the Society for Participatory Medicine website:Search

We’re quoted in PBS Newshour online

Our Susannah Fox (and her research) are quoted in a piece yesterday on PBS Newshour’s online  edition about the HealthCare.gov insurance research site. There’s also a small quote from me.  

“Give Us Our Dammed Data” – Regina Holliday

17 authors with weapons in hand stare down upon the viewer. The three panel painting measures 60 inches by 144 inches. It is a very large painting, and yet it is crowded with those who have been hurt and those who have suffered. Every one of them is an author. Nearly...

Dear White House: The Personal Data Challenge

Gary Wolf of Wired has posted a whizbang write-up that came out of a whirlwind one-hour 12-way Skype chat about personal health data. Sound frenetic? It was. (I participated. It was, well, 12-way.) I can’t imagine how to model what happened, except to say that...

CMS slides from the Meaningful Use rules announcement

At last Tuesday’s announcement of the Meaningful Use rules, many people asked for the slides. After going through clearances, they arrived today. Click for 44 page PDF (649k). Correction 12:19pm ET 7/19: the PDF has been replaced with a PowerPoint, which we...

Laugh, Sing, and Eat Like a Pig

e-Patient Dave’s book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you’re spending time with a wise friend — add some tears and laughs and you have Dave’s book. I...

Crowdsourcing a Survey: Health Topics

The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series...

HHS posts Consumer e-Health job. Apply by 8/16.

Josh Seidman, Director of Meaningful Use, sent this. It’s for a two year full time job in DC, possibly extendable. No relocation costs will be paid – you’re on yer own. :–) From what I hear, talking to people working in HHS these days, “full...

Pandas, Lobsters, and Health Care

Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of...

Mobile, Social Health at the National Library of Medicine

Update: The NLM released new widgets on July 14, along with a redesigned MedlinePlus site. (Read @eagledawg’s take on these new tools, as well as her response to this post.) Speaking to the senior staff of the National Library of Medicine last week was like...

Maggie Mahar on Doctors & Patients Sharing Information

Prolific, unsinkable Maggie Mahar commented today on the Century Foundation’s HealthBeat blog about Paul Levy’s “Yes, Patients Can Help Their Doctors” introduction to my forthcoming book. Among other things she pointed out, correctly, that not...

Donate