by e-Patient Dave | Sep 9, 2010
The Running A Hospital blog has another discussion of dealing with medical error. This time, the hospital has opened up an error of its own (a wrong side surgery) for examination by the Open School of the Institute for Healthcare Improvement. Sample comments: From...
by John M. Grohol, Psy.D. | Sep 7, 2010
The Boston Globe has a revealing article about a study published in Annals of Internal Medicine where patients thought that a heart stent would help prevent another heart attack. But doctors had only told patients that it would relieve future chest pain. How can such...
by e-Patient Dave | Sep 2, 2010
At last weekend’s MITSS patient safety workshop, some of us remarked out loud that it would be great to have a simple video teaching newly admitted hospital patients the importance of hand washing, and even showing them how to speak up to a staff person who...
by e-Patient Dave | Sep 1, 2010
Claudia Williams at ONC has job openings for “a couple of talented folks” to add to the high-energy team, to work on State HIE. Details: (HIE is Heath Information Exchange. The State HIE program is described here.) Claudia says:...
by John M. Grohol, Psy.D. | Sep 1, 2010
A friend of mine, Ms. S., recently had an unsettling experience with a company called Caremark (the parent company of pharmacy CVS), whom she fills her prescriptions through. She was reordering a prescription refill she buys through the mail, and needed to pay for it....
by Susannah Fox | Aug 30, 2010
New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite...
by e-Patient Dave | Aug 28, 2010
Today I’m participating in a workshop, “Engaging Minority Communities in Safer Healthcare,” organized by MITSS (Medically Induced Trauma Support Services), a Boston non-profit I’ve written about before. The current speaker is Lisa...
by Peter Frishauf | Aug 26, 2010
We welcome Peter Frishauf as an author on our blog. Peter is on the Editorial Board [brief bio] of our Society’s Journal of Participatory Medicine, and as described below, has already authored some important material on this subject. His first post here is...
by e-Patient Dave | Aug 24, 2010
Fascinating post by Louis Gray, reflecting on the transient nature of much of social media.
by e-Patient Dave | Aug 23, 2010
Trisha Torrey sums it up niftily on her Patient Empowerment Blog at About.com.
by e-Patient Dave | Aug 19, 2010
Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke titled “How to Become a More Effective e-Patient.” Here it is, in four YouTube segments. “Charlie,” as we all...
by Jon Lebkowsky | Aug 19, 2010
Howard Rheingold has shared video of a backyard discussion he had with technology pioneers Doug Engelbart and Ted Nelson when they dropped by for dinner, along with Howard’s wife Judy and Nelson’s wife Marlene Mallicoat. Brief but intense discussion of the...
by Roni Zeiger | Aug 17, 2010
When you have a doctor’s appointment, and she makes some notes and later formalizes them for your medical record, would you like read them?  There’s been debate over the years about whether patients should read the notes that doctors write about them and their health...
by e-Patient Dave | Aug 12, 2010
Next in our series of posts about our founder Doc Tom. Previous time capsules: 1980 and 1985. Come, ye economics buffs and algebra fans; get out your pencils and solve for x, n, and XX: Whatever else the year 19XX is remembered for, it will — without a doubt — go down...
by e-Patient Dave | Aug 10, 2010
Last Friday we dug up our founder Doc Tom’s Seven Laws of Self-Care, from 1985. At one time Tom served as medical editor of the Whole Earth Catalog, the Woodstock-era empowerment resource whose subtitle was “Access to Tools.” At left (click to...
by Susannah Fox | Aug 9, 2010
If you haven’t listened to the Patient Voices series on The New York Times site, let me be the first to recommend it. I spend quite a bit of time writing up survey data, working with moderately large respondent pools (N=2,253 is the number of people who...
by Susannah Fox | Aug 9, 2010
If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek...
by e-Patient Dave | Aug 8, 2010
Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio. This item has nothing to do with OpenNotes itself – it’s what I’m seeing now that I’ve started accessing my...
by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Aug 5, 2010
Regular readers know that our founder, “Doc Tom” Ferguson, was an absolute visionary who saw that patients have a much bigger role in their own health than most people realize – at least in our culture. The white paper at top right of this site is...
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