by Susannah Fox | Oct 11, 2010
For this Grand Rounds, I chose David C. Kibbe & Joseph C. Kvedar’s article, “Building a Research Agenda for Participatory Medicine” (JoPM, Vol. 1, 2009). I will highlight two of their “ready-to-go” research questions: What is the role...
by Jon Lebkowsky | Oct 6, 2010
e-Patients.net is hosting Grand Rounds next Tuesday, October 12. We’re asking this week’s Grand Rounds bloggers to create posts inspired by, supportive of, or critical of articles in the Journal of Participatory Medicine. We have a great reason for...
by e-Patient Dave | Oct 6, 2010
Later this month something’s coming that I have a suspicion will be wonderful. Carlos Rizo of Toronto’s Health Strategy Innovation Cell tipped me off to this October 20 webcast: The Ontario Hospital Association (OHA) and the Health Strategy Innovation Cell...
by Gilles Frydman | Oct 5, 2010
I’m sure that got your attention! But that is exactly Regina’s message: We are all patients . Both collectively and individually we are the most important and the most silent stakeholder of the healthcare system. To discuss the expanding role of the patient...
by Susannah Fox | Oct 4, 2010
I’m attending a LOT of conferences this fall and over & over I am seeing the power of having patients in the room. e-Patient Connections was a wonderful and well-documented example (in blogs, on Twitter, plus the large in-person audience) as will be Health 2.0 San...
by e-Patient Dave | Oct 2, 2010
Elizabeth Cohen is surely the most visible spokesperson for patient empowerment, because she’s on CNN and CNN.com. She’s got an hour-long special on CNN this weekend. Highly recommended, especially for friends and family who don’t get what this is...
by e-Patient Dave | Oct 2, 2010
My mom shot me a note today about this cover story in the new Reader’s Digest. Unhappy reading but good patient education. Cites some familiar names, e.g. Peter Pronovost and Robert Wachter. It’s good to see “wake up” messages in the mass...
by Susannah Fox | Sep 29, 2010
Kevin Kruse and his team have put together another incredible event in Philadelphia: e-Patient Connections 2010. Follow the tweets by searching for #epatcon or read the excellent summaries being written in real-time by Leigh Householder and Seth Quillin on the blog...
by e-Patient Dave | Sep 27, 2010
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our...
by Susannah Fox | Sep 27, 2010
Last week’s Mayo Transform symposium was a two-day excursion into the world of science, data, design, and the secret ingredient to health: love. Patch Adams, MD, kicked things off in grand style. If you’ve never seen him speak, treat yourself to a hit of...
by e-Patient Dave | Sep 24, 2010
Pathways, a Scientific American magazine, has a long new article The Rise of the Empowered Patient. It quotes, among others, our friend Lucien Engelen (@Zorg20, which is Dutch for Health 2.0). I’m starting an all day meeting so I can’t absorb yet –...
by Susannah Fox | Sep 22, 2010
I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it...
by Charlie Smith | Sep 22, 2010
The Journal of Participatory Medicine (JoPM), the online peer-reviewed, open access publication of the Society for Participatory Medicine, has released new content for its 2010 volume. The journal’s mission is to transform the culture of medicine from a delivery...
by e-Patient Dave | Sep 21, 2010
By Lisa Neal Gualtieri. (Her earlier much-commented post on this subject is here.) The Boston Globe reported this month on the sentencing of a former US Airways Express pilot, Stephen Sharp, “for selling a powdered drink mix over the Internet that he claimed was...
by e-Patient Dave | Sep 20, 2010
You can’t be well empowered if you hear advice wrong. That’s why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced “fimdim,” has...
by e-Patient Dave | Sep 17, 2010
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a...
by Susannah Fox | Sep 15, 2010
The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!
by e-Patient Dave | Sep 14, 2010
On Monday NPR’s Scott Hensley posted: “Between the Internet and all the data insurance companies and the government collect on doctors, you’d think it would be a lot easier than it used to be to find a good one. But it’s not.” Sound...
by Gilles Frydman | Sep 14, 2010
The New England Journal of Medicine’s Health Policy and Reform just published an opinion piece about the first public release of online report cards regarding 221 of the 1,100 US cardiac surgery programs. The authors believe that this event will fuel the debate...
by Susannah Fox | Sep 13, 2010
Prepared for Mayo Transform 2010: Thinking Differently About Health Care (video now available). Ten years ago, I wrote the Pew Internet Project’s first report on the impact of the internet on health care, calling it “The Online Health Care Revolution.” Back then, the...
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