Search all of the Society for Participatory Medicine website:Search
Patient Ownership of Data?

Patient Ownership of Data?

Do you care about health data ownership and want to stay abreast of national initiatives to wrestle with and solve ownership issues? If so, this post is for you. What does it mean to own my health data? Is it like owning my car or my house? Is it like a copyright? Do...

On Making Patient Reviews of Physicians More Useful

I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The...

The Iceberg Waiting for Your Health Care Data

The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...

New paradigm in data sharing and analysis?

A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...

e-Patient Manifesto: “Patients Included”

In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in...

Major cover story in Healthcare IT News

Healthcare IT News is one of the most important – if not the most important – health IT publications. With readership of 54,000, it’s seen by a lot of important “eyeballs,” as they say in marketing. And in this time of critical change, as...

Rainbow Button – 2013 Edition

Meaningful Use Stage 2 includes the requirement that health care providers with EHRs seeking Meaningful Use incentive dollars demonstrate that 5% of patients actually view, download or transmit their data. The HIPAA/HITECH Omnibus Rule, which is now fully in effect...

Blue Button Plus Challenge – Call for Patient Input

ONC is sponsoring the Blue Button Plus Challenge — putting up some prize money to incentivize teams of developers to come up with solutions to the problem of getting patient data to patients. The first phase of the challenge is crowdsourcing ideas from patients...

Donate