by Mary Hennings | Dec 30, 2024
The news cycle is moving on, but the killing of Brian Thompson was awful, no matter how one feels about the shortcomings of the American health care system. In a recent New York Times opinion piece, Andrew Witty, president of the UnitedHealth Group, wrote that no one...
by Ileana Balcu | Jun 8, 2017
Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...
by Ileana Balcu | Jan 10, 2017
Member Angela Lundberg’s blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. Health Insurance & RA: Dangerously Uncovered Besides the benefits she...
by Ileana Balcu | Sep 29, 2016
Beautiful and comprehensive blog post from Regina Holliday about different types of patient advocates, the evolution of the patient as speaker, consumer, policy-igniter and her own work....
by e-Patient Dave | Dec 2, 2015
Our society’s open-access Journal of Participatory Medicine has not gotten enough play, so to speak, on this blog. Let’s try posting something about each article as it emerges. Email subscribers will receive them like any other post; online these posts...
by Ileana Balcu | Dec 2, 2015
Carol Gunn, an SPM physician member, was featured in a Forbes article about her sister’s misdiagnosis, and her mission after her sister’s death. Carol’s tips for patients to avoid being victims of diagnostic mistakes: Tip #1: Get a second opinion...
by Ileana Balcu | Nov 10, 2015
The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic condition: Am I disabled? It discusses the Americans with...
by Ileana Balcu | Aug 20, 2015
The site Crohnology, well known patient community for patients with IBD (Inflammatory Bowel Disease), recently started focusing their blog on explaining IBD- focused research to patients. Their most recent blog post describes a study that studied what patients with...
by Casey Quinlan | Jun 30, 2015
Our fearless leader, Nick Dawson, has a terrific piece up on RVANews.com about the issues around building a children’s hospital in Richmond, Virginia. An excerpt: 100% of healthcare costs are passed onto the public. Most costs seem to be borne by insurance...
by Ileana Balcu | Jun 16, 2015
Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students....
by Ileana Balcu | Sep 10, 2014
Our member Suzanne Mintz, a Family Caregiver Advocate, shares the link to her Narrative Matters article/podcast in the current issue of Health Affairs: The Double Helix: When The System Fails The Intertwined Needs Of Caregiver And Patient...
by Ileana Balcu | Jun 13, 2014
An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world....
by Ileana Balcu | Jun 9, 2014
An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves –Â Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged...
by Ileana Balcu | May 6, 2014
Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient’s hospital stay – really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress...
by e-Patient Dave | May 4, 2014
Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from...
by Ileana Balcu | Apr 14, 2014
4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just...
by Ileana Balcu | Apr 2, 2014
Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s...
by David Harlow | Mar 27, 2014
A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...
by Casey Quinlan | Mar 12, 2014
Glyn Elwyn, a very smart guy/MD who’s currently thinking deep thoughts at Dartmouth, was a participant at the undisclosed location on the undisclosed project I was involved in two weeks ago. He’s posted a real barn-burner on BMJ. Its headline:...
by Ileana Balcu | Jan 14, 2014
Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records:...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
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