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Eric Topol: Landmark Digital Medicine Trial: Patient-Generated Data Improve Cancer Survival

by Ileana Balcu | Jun 8, 2017

Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...

Angela Lundberg: Health Insurance & RA: Dangerously Uncovered

by Ileana Balcu | Jan 10, 2017

Member Angela Lundberg’s blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. Health Insurance & RA: Dangerously Uncovered Besides the benefits she...

From Regina Holliday’s blog: on Patient Advocacy

by Ileana Balcu | Sep 29, 2016

Beautiful and comprehensive blog post from Regina Holliday about different types of patient advocates, the evolution of the patient as speaker, consumer, policy-igniter and her own work....

New in our journal: Evaluation of a Lay Health Educator Model with Low-Income Latinas

by e-Patient Dave | Dec 2, 2015

Our society’s open-access Journal of Participatory Medicine has not gotten enough play, so to speak, on this blog. Let’s try posting something about each article as it emerges. Email subscribers will receive them like any other post; online these posts...

Forbes article featuring Carol Gunn: One Doctor’s Quest To End The Plague Of Screwed-Up Medical Diagnoses

by Ileana Balcu | Dec 2, 2015

Carol Gunn, an SPM physician member, was featured in a Forbes article about her sister’s misdiagnosis, and her mission after her sister’s death. Carol’s tips for patients to avoid being victims of diagnostic mistakes: Tip #1: Get a second opinion...

Crohnology Blog: Am I disabled?

by Ileana Balcu | Nov 10, 2015

The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic condition: Am I disabled? It discusses the Americans with...