by Susannah Fox | Aug 6, 2013
“The most exciting innovation of the connected health era is…people talking with each other.” This is the essential point of a post that is garnering some great comments on my personal blog. I weave together concepts I developed in my work at the Pew...
by Kathleen O'Malley | Jun 10, 2013
Healthcare IT News posted a detailed story about how the Cleveland Clinic plans to roll out its new MyChart EMR to give patients complete access to their health records by the end of 2013. According to the article, the Cleveland Clinic believes this move is “the...
by Kathleen O'Malley | Jun 5, 2013
This guest post was written by Lisanne St. Onge Klute and originally appeared on The Story of iPatchman, a blog for e-patients with brain tumors. It is a great example of the power of social media for helping e-patients find the best treatment. Thanks to Akiva...
by e-Patient Dave | Feb 19, 2013
Important quick update – pardon the lack of formatting – I’ll try to clean it up later – ———- Forwarded message ———- From: Retraction Watch Date: Tue, Feb 19, 2013 at 4:22 PM Subject: [New post] Does...
by Ileana Balcu | Feb 15, 2013
The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog...
by e-Patient Dave | Feb 6, 2013
Major typo fix, 3:23pm – “they’re giving” is not same as “they’re given”! Sorry. This note arrived today from the Institute of Medicine. I’m in DC at the moment, at a big briefing by the Health Affairs policy journal...
by Ileana Balcu | Jan 25, 2013
Thanks to Carla Berg for sharing this: Eric Topol was on Rock Center tonight. He talked about the patient empowerment and give us our data themes he brings up towards the end, he did everything but mention #gmdd and patients in the drivers seat explicitly. The key to...
by Ileana Balcu | Jan 25, 2013
The HIMSS blog features e-Patient Dave, the 5 Es of e-Patients and how social media can help. http://blog.himss.org/2013/01/25/part-1-value-of-social-media-in-healthcare-is-already-outlined-just-not-realized/ For whatever reason – whether it’s budget, time, buy-in or...
by Jessie Gruman | Jan 17, 2013
(Originally published on the CFAH Prepared Patient Forum January 16, 2013) Sometimes, angry patients and dissident doctors and nurses warn us about the impending patient revolution – how health care is so unsafe, of such poor quality and so expensive for us patients...
by e-Patient Dave | Dec 29, 2012
Merle Bushkin of MedKaz (a secure PHR device) is extremely unhappy with the reality that although we’ve spent years and billions on EMR adoption, the practice of healthcare hasn’t transformed yet. In “Where’s the urgency, the anger, the...
by Susannah Fox | Dec 1, 2012
Check out the documentary film, The Waiting Room, set in the emergency department of Highland Hospital in Oakland, CA. I wrote a post about a screening and discussion in DC last night and I’m hoping to get a report from tonight’s Cambridge, MA, event. If...
by Ileana Balcu | Oct 22, 2012
Member Alicia Staley on the HIT Community (MA HI Community)Â blog with a great recount of the first EHR exchange in Massachusetts – it happened last week: https://www.thehitcommunity.org/2012/10/16596/
by e-Patient Dave | Aug 30, 2012
Our friend Jim Conway, revered advocate for better care, writes: To my colleagues in the patient and family centered care, personal and public engagement community. On September 6th the IOM will release a new report on building a learning healthcare system, “Best Care...
by Kathleen O'Malley | Aug 14, 2012
This listserv exchange between new Society for Participatory Medicine members is a nice example of how “newbie” e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be....
by Ileana Balcu | Aug 2, 2012
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go Eve!...
by Ileana Balcu | Jul 25, 2012
From Hive Strategies, an interesting blog post talking about the healthcare”intimate public” – the communities that patients with a certain condition form with each other. An important part of being an e-patient is being engaged with others like...
by Ileana Balcu | Jul 24, 2012
Member Eve Harris wrote another great blog post for KQED – Public Media for Northern California. It is about one woman’s personal decision on how to treat her breast cancer. A short extract below: Basila is strong evidence that individuals react...
by e-Patient Dave | Jul 23, 2012
The ever-vigilant Ted Eytan MD writes: I recommend taking a look at this and seeing if the proposed changes are more patient friendly, or if they go far enough to allow patients to see their health data online. At issue is a bill in the California legislature to...
by e-Patient Dave | Jul 17, 2012
As Meaningful Use rolls out, and providers are required to share data with us, there are a lot of concerns about whether their lives will spin out of control as patients besiege them with ignorant questions. We’ve discussed this in our many posts about the...
by Ileana Balcu | Jul 17, 2012
If you are in Boston this Friday, you can attend the Social Media Breakfast. The SPM member Alicia Staley will present the progress of the  #bcsm (breast cancer social media) community. Other speakers will be there as well and it only costs $8.00. For more details and...
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