by Ileana Balcu | Jul 13, 2012
Thanks to member Marge Benham-Hutchins RN, PhD for sending us the link to this RWJF initiative http://www.rwjf.org/qualityequality/product.jsp?id=74596&cid=XEM_A6199 I especially liked this principle: This relationship [nurse-patient] is grounded in...
by Ileana Balcu | Jul 11, 2012
Thanks to Keith Boone for blogging about this summit and raising the issue of why NeHC members were notified about this meeting with only four days notice! http://motorcycleguy.blogspot.com/2012/07/pushing-patients-around-not.html ...
by Kathleen O'Malley | Jul 5, 2012
This guest post by Idelle Davidson originally appeared in the Huffington Post as “ASCO, Where Have You Been? The organization that sets standards for cancer care does not include cognitive issues in their patient consent document.” Last month, I was in Arlington, Va....
by Kathleen O'Malley | Jun 27, 2012
This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media...
by Ileana Balcu | Jun 25, 2012
Lygeia Ricciardi from ONC with a discussion about giving patients access to their data and a call for patients to volunteer in ONC’s worksgroups...
by Ileana Balcu | Jun 25, 2012
From the HIMSS Blog, Adam Bazer with a personal health story where even in a great hospitals the IT is not as connected as can be. We wish your son Ari well, Adam! http://blog.himss.org/2012/06/25/healthcare-it-from-the-view-of-a-worried-father/ The link inside the...
by Ileana Balcu | Jun 22, 2012
Member Elisabeth Bailey published a few articles on the Dr Greene website. Her recent book, The Patient’s Checklist, got great reviews and is a great workbook for anyone having any medical procedure in a hospital. In the Dr Greene articles, Elisabeth is...
by Ileana Balcu | Jun 22, 2012
Thanks to David Harlow for the heads-up to a contest for scholarships for patients to attend Mayo Clinic’s Social Media Summit: Excerpt: The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media Summit...
by Ileana Balcu | Jun 21, 2012
Thanks to member Marya Zilberberg for recounting and elaborating on the list serve discussion about what’s best to use for clinical data: structured or unstructured data: http://evimedgroup.blogspot.com/2012/06/unstructured-medical-record-another.html ...
by e-Patient Dave | Jun 19, 2012
Our Doc John” Grohol received this inquiry along from a writer who’s doing a story about physician conflicts of interest and patient care. If this is of interest to you, please contact the writer directly. Thank you! ____________ I’m writing an...
by e-Patient Dave | Jun 19, 2012
Our Doc John” Grohol received this inquiry along from a writer who’s doing a story about physician conflicts of interest and patient care. If this is of interest to you, please contact the writer directly. Thank you! ____________ I’m writing an...
by Ileana Balcu | Jun 19, 2012
Thanks to member Eve Harris that pointed our her review of Joe and Teresa Graedon’s 2011 book “Top Screwups Doctors Make and How to Avoid Them”. From Eve: My blogpost ” Better Care, Fewer Worries” links to the SPM monthly intro this...
by Susannah Fox | Jun 7, 2012
I tweeted a stat this week which garnered some sharp critiques: 1 in 4 U.S. internet users track their own health data online – @pewinternet pewrsr.ch/khtiMB #healthdata — SusannahFox (@SusannahFox) June 5, 2012 Please help me improve how Pew Internet...
by Ileana Balcu | Jun 5, 2012
Member Keith Boone about the meeting at the White House with ONC and Regina Holliday, e-Patient Dave and others: http://motorcycleguy.blogspot.com/2012/06/secret-white-house-meetings-with.html Discussions were about giving data to patients, security, privacy,...
by Kathleen O'Malley | Jun 1, 2012
SPM member Nancy B. Finn shares some recent research findings that confirm what many of us suspected about the value patients get out of health care in the U.S. When we go to the supermarket or the store to make a purchase, most of us are concerned about getting what...
by e-Patient Dave | May 31, 2012
From SPM member Gangadhar Sulkunte: This article is very powerful. How the parents had to go through genomic hell to track down which genetic ailment was killing their son. Lots of useful information on genetic disorders, gene mutations here:...
by Ileana Balcu | May 24, 2012
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned....
by e-Patient Dave | May 19, 2012
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he...
by Kathleen O'Malley | May 7, 2012
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by...
by e-Patient Dave | May 6, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov.] SPM member Brian Ahier is Health IT Evangelist at Mid-Columbia Medical Center in The Dalles, Oregon. Today he posted this on Google+; reposted here with...
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