by Kathleen O'Malley | Apr 30, 2012
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site...
by Kathleen O'Malley | Apr 26, 2012
SPM member Ken Farbstein sent us this invitation to help persuade the Office of the National Coordinator for Health Information Technology to include printed summaries of doctor visits in the ONC’s definition of meaningful use. After our pets go to the...
by e-Patient Dave | Apr 25, 2012
From Nadia Dawson at Ogilvy, the PR firm that’s handling AHRQ (the Agency for Healthcare Research & Quality) – ———- Forwarded message ———- From: Nadia Dawson Date: Wed, Apr 25, 2012 at 6:34 PM Subject: Cancer...
by e-Patient Dave | Apr 25, 2012
I participated today in a webinar  hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don’t click through to the whole thing, here’s a quick excerpt: Long ago in another career...
by Kathleen O'Malley | Apr 24, 2012
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence...
by Kathleen O'Malley | Apr 24, 2012
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the...
by e-Patient Dave | Apr 19, 2012
From SPM communication team leader Ileana Balcu: Lisa Fields @PracticalWisdom hosted an wonderful chat last night on the topic of patient presence at conferences. Lisa was a great host and we had a record number of paticipants. Please skim through the transcript on...
by e-Patient Dave | Apr 16, 2012
Thanks to SPM co-founder Joe Graedon of PeoplesPharmacy.com for this note about today’s special section in the Wall Street Journal on healthcare innovation. (Some of the content requires a subscription, but you can register for 8 weeks free.) Joe’s note,...
by Jon Lebkowsky | Apr 12, 2012
Author Mark Dery’s eloquent essay on his hospitalizations for cancer and complications is clearly one of the best – and most disturbing – patient stories we’ve read. [Link]
by Kathleen O'Malley | Apr 11, 2012
This week in ScienceRoll, Dr. Bertalan Meskó blogs about several links that the e-patient community will find interesting: IBM Clinical Genomics Helps with Clinical Decision Making Haifa, Israel has developed a new clinical decision support tool that correlates a...
by Kathleen O'Malley | Apr 4, 2012
Co-Editors-in-Chief Joe and Terry Graedon tell patients how to get the most out of today’s all-too-brief medical office visits in the April editorial of the Journal of Participatory Medicine. “Making Every Second Count – What We Can Do As Patients”...
by e-Patient Dave | Mar 31, 2012
When Medicine Really Gets Personal:Â The DIY Clinical Trial – Health Blog – WSJ http://blogs.wsj.com/health/2012/03/30/when-medicine-really-gets-personal-the-diy-clinical-trial/
by Jon Lebkowsky | Mar 29, 2012
Consumer Reports notes that medical devices are rarely tested to determine whether they’re safe. Consumers Union’s Safe Patient Project is gathering stories from patients who’ve had a problem with an implant or a medical device. The Project is...
by e-Patient Dave | Mar 27, 2012
SPM member Eve Harris, on her “Healthy Piece of My Mind” blog, has a potent post on yesterday’s Supreme Court decision about the BRCA1 and BRCA2 patents held by a private company. The patents have restricted patients’ and families’ access...
by e-Patient Dave | Mar 16, 2012
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his...
by e-Patient Dave | Mar 16, 2012
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s...
by Kathleen O'Malley | Mar 16, 2012
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her...
by e-Patient Dave | Mar 14, 2012
Twitter friend @Scanman submitted this one. Robert Krause was diagnosed with diabetes in 1926, at age 5, shortly after insulin was introduced. What a story of a patient who was engaged in his care – starting at age 6. He died this month, just before turning 91....
by e-Patient Dave | Mar 14, 2012
We often hear lately that physicians don’t KNOW what things cost, and are thus disempowered from helping patients control costs. This item arrived today from The Medical Professionalism Blog, the blog of the ABIMF, the American Board of Internal Medicine...
by Kathleen O'Malley | Mar 13, 2012
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15....
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