by Danny van Leeuwen | Nov 19, 2012
Danny van Leeuwen, Opa MPH RN CPHQ is a patient (Multiple Sclerosis), a caregiver, a nurse, and a leader. A version of this piece originally appeared on his blog, Health Hats. What do we e-Patients need in our electronic health records? Help by sharing in the...
by e-Patient Dave | Nov 4, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Oct 23, 2012
USA Today has a piece today on HealthGrades, one of the sites that provide information on medical outcomes and safety. The data show that quality varies widely. Experienced e-patients know this, and will learn what they can about their local treatment options....
by e-Patient Dave | Oct 22, 2012
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the...
by Ileana Balcu | Oct 17, 2012
Hash-Day on Tweet Chat at #s4pm on Weds, 10/17 In honor of Social Media Week (at Mayo in MN; #mayoragan) and with a nod to @hjluks (of the @Symplur hashtag project) our #s4pm chat theme this week will be about #hcsm and the topic is: “How Do You Like To...
by e-Patient Dave | Oct 9, 2012
We’ve long written here about Health News Review, the terrifically empowering and educational news-dissection service started by Gary Schwitzer and now involving numerous writers. Health News Review was modeled after a similar service in Australia started by Ray...
by e-Patient Dave | Oct 7, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Oct 1, 2012
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to...
by e-Patient Dave | Sep 30, 2012
I’ll be blunt here: three years ago, late 2009, when I gave my first keynote speech ever, many observers said “Well Dave, that’s fine for you, but you’re the only one.” I replied: if I’m the only one, there’s nothing to talk...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by Kathleen O'Malley | Sep 26, 2012
Guest blogger Marya Zilberberg is the author of Between the Lines: Finding the Truth in Medical Literature. She originally posted this piece on her blog Healthcare, etc. I have been looking up information on endometriosis for a friend of mine, and came upon this from...
by e-Patient Dave | Sep 20, 2012
I was in Maine last night, speaking to the annual meeting of the excellent (and very E) Maine Quality Counts, which is one of the sixteen Aligning Forces for Quality (@AligningForces) communities, a project of the Robert Wood Johnson Foundation’s Pioneer...
by Joe Graedon | Sep 18, 2012
Following up on Susannah Fox’s superb summary of Medicine 2.0 Day One, I would like to offer some overview and comments about day two. This was my first Medicine 2.0 meeting. I had heard a lot about Gunther Eysenbach, MD, MPH, and his merry band of...
by Kathleen O'Malley | Sep 18, 2012
Guest blogger Neel Shah, MD is the Executive Director of Costs of Care and a chief resident in obstetrics and gynecology based at Harvard Medical School. As a presidential election looms and the American economy struggles to recover, the spiraling costs of healthcare...
by Kathleen O'Malley | Sep 14, 2012
Guest blogger Susan R. Mende, BSN, is a senior program officer at the Robert Wood Johnson Foundation, the nation’s largest philanthropy devoted exclusively to health and health care. She is engaged in the Foundation’s efforts to help consumers take an active role in...
by Kathleen O'Malley | Sep 13, 2012
Guest blogger Nancy B. Finn is a writer and thought leader on the impact of digital communication on organizational behavior, health care, and patient care. When you go to the supermarket, it is fairly easy to make good choices about which cereal or fruit to purchase....
by Danny Sands, MD | Sep 11, 2012
This is the blog of the Society for Participatory Medicine. Since its inception, the Society has been an entirely volunteer organization, the only exception being the Managing Editor of our Journal. While this was generally fine in the early days, we have grown and...
by e-Patient Dave | Sep 4, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Aug 30, 2012
SPM member Brian Ahier @Ahier is one of the best known and most respected voices for patient engagement in the “health IT geek” world. He’s Health IT Evangelist for Information Systems at Mid-Columbia Medical Center in The Dalles, Oregon, which is a...
by e-Patient Dave | Aug 16, 2012
We’re not in it for “the eyeballs,” as they say in the world of website marketing: this isn’t a blog that obsesses about pageviews, unique visitors etc, for purposes of selling ads. (We don’t do ads, we don’t do link exchanges,...
SPM at the World Orphan Drug ConferenceApril 6, 2026
Introducing the CHAMP Principal Investigator: Cait DesRoches (Part 2)April 1, 2026
Everylife Foundation Community Congress Annual Meeting HighlightsJanuary 19, 2026
Collaboration is the Best Medicine: Patient-Centered Collaboration Grounded in Caritas®December 16, 2025
Recent Comments