by Kathleen O'Malley | Dec 6, 2011
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its...
by e-Patient Dave | Dec 4, 2011
We’re taking a page from our good friend @Berci, whose ScienceRoll blog has won numerous awards. He frequently runs an introduction post for new subscribers, to show them around the place and let them know all the things he’s up to. We’re stealing...
by e-Patient Dave | Nov 22, 2011
As in 2009 and 2010, this year too we donate our top post at Thanksgiving to the Engage With Grace movement, encouraging people to participate in this very important discussion, at the time of year when we’re most likely to be together with families. Because it...
by Kathleen O'Malley | Nov 21, 2011
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we’re adding it here, four days after the...
by Roni Zeiger | Nov 16, 2011
This post and 5 minute video were published on ABC News yesterday and I want to share them with this community as well. Three months ago, at the age of 40, I had a small bleed in my brain. My story is no more special than any of your stories, but I learned something...
by e-Patient Dave | Nov 16, 2011
Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare system.” And as we start to get real about that –...
by Kathleen O'Malley | Nov 11, 2011
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell You.” Articles like this create fear...
by John M. Grohol, Psy.D. | Oct 23, 2011
The 60 minutes interview with Steve Jobs’ biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of...
by e-Patient Dave | Oct 19, 2011
Last week at a gala in Beverly Hills, our society’s co-founder Dr. Alan Greene was honored for his amazingly effective, empowering, democratizing WhiteOut initiative, which in six months has radically altered pediatricians’ recommendations about...
by John M. Grohol, Psy.D. | Oct 16, 2011
Please join us for the 2nd Annual Society for Participatory Medicine Cocktail Reception, taking place on Thursday, October 20, 2011 at the Liberty Hotel in Boston (http://www.libertyhotel.com/) from 6:00 – 8:00 pm. If you’re attending the Connected Health...
by e-Patient Dave | Oct 11, 2011
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that’s not just about the biology. In this powerful narrative, a hospital...
by David Harlow | Sep 30, 2011
On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other...
by Kathleen O'Malley | Sep 27, 2011
Guest blogger and SPM member Nancy Finn looks at ways to improve patient-physician communication. There has been a lot of discussion about patient/provider communication, partly driven by the move to electronic health records and the question of who has access to the...
by Kathleen O'Malley | Sep 25, 2011
Guest blogger Beth Austin shares her professional and personal advice on choosing the right doctor. She is the principal of Crescendo Consulting Group. I’ve spent a lot of time in my professional life knee-deep in articles on healthcare quality and medical...
by Susannah Fox | Sep 23, 2011
I was honored to give the closing keynote at the Medicine 2.0’11 Congress at Stanford. In preparation for it, I gathered all of the Pew Internet Project’s recent research on social networks, smartphones, and health communications. Then I added stories from...
by e-Patient Dave | Sep 23, 2011
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new...
by Kathleen O'Malley | Sep 21, 2011
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online...
by Kathleen O'Malley | Sep 19, 2011
Guest blogger Dr. Neel Shah is the Executive Director of www.CostsOfCare.org and a senior resident in the Massachusetts General Hospital-Brigham & Women’s Hospital combined residency in Obstetrics and Gynecology. Last year, the nonprofit that I direct launched an...
by Kathleen O'Malley | Sep 12, 2011
Guest blogger Tami Boehmer shares a recent conversation with e-Patient Dave about the pitfalls of survival statistics and the power of hope. Tami’s blog, “From Incurable to Incredible,” is at www.miraclesurvivors.com. I recently had the honor of...
by Kathleen O'Malley | Sep 9, 2011
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and...
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