by Kathleen O'Malley | Sep 9, 2011
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and...
by Jessie Gruman | Sep 6, 2011
Have you followed the long and painful efforts to improve the information prescription drug manufacturers are required to provide us? Really, given that almost half of us in the US take at least one prescription medication daily, you’d think this would be a high...
by Gilles Frydman | Sep 4, 2011
I have known Sharon Anderson for many years and watched her eAdvocacy evolve. A nine year leiomyosarcoma (LMS — a very rare cancer) survivor, Sharon has tirelessly used her social work skills to help LMS patients directly while actively promoting an increase in...
by Kathleen O'Malley | Sep 2, 2011
Nancy Finn submitted this guest post about the challenges facing doctors and patients who want to have clinical conversations online. The quest for the right communication formula and balance that will satisfy doctors and e-patients who want to experience continuous...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by Kathleen O'Malley | Aug 9, 2011
Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still...
by e-Patient Dave | Aug 5, 2011
I’m about to board a plane at 5 a.m. so this is a quick preliminary note. One of the key skills an engaged, informed patient needs is how to find good quality care. Today USA Today reports that Medicare has just released information that I think we’ve had...
by e-Patient Dave | Aug 2, 2011
The Society for Participatory Medicine recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a...
by e-Patient Dave | Jul 26, 2011
We’ve updated this blog’s design template so it’s more clearly a member of the SPM family. Specifically, we’re now using a color-modified version of our Journal of Participatory Medicine’s template, which is a lot slicker and more modern than this...
by John M. Grohol, Psy.D. | Jul 24, 2011
I’m all for citizen journalism, and can even stand the content mills like LiveStrong, who have pimped out their name and brand in order to make a quick buck. But I draw the line with bad reporting and worse, biased representation of the data to prove a point....
by e-Patient Dave | Jul 22, 2011
This has nothing to do with healthcare, but it’s the most priceless example I’ve seen in a long time of Not Customer-Oriented Thinking, and perhaps Scary Workflow, both of which do apply to healthcare sometimes. As a Boston-based traveler, I have United...
by Kathleen O'Malley | Jul 19, 2011
SPM member John Novack, of the Inspire.com patient communities, submitted this guest post by Wendy Station about another online community — another great example of patients engaging in their care, supplementing the value they get from their medical...
by Susannah Fox | Jul 19, 2011
Just in case anyone is curious: my notes from Health Foo, a meeting held last weekend in Cambridge, MA. It’s long, so skim for the 9 lessons if you want a shortcut. What: Foo Camp is an unconference, constructed on the spot by the people who show up, with just a...
by Jessie Gruman | Jun 28, 2011
Media coverage of the challenges we face in making good treatment decisions often focuses on and sensationalizes medical errors, catastrophes and risks. So it was great to see this impressive TV news clip circulated by Gary Schwitzer of HealthNewsReview.org in his...
by John M. Grohol, Psy.D. | Jun 25, 2011
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its...
by e-Patient Dave | Jun 24, 2011
On this blog we try to understand and explain how the world has changed and is changing, with the goal of helping everyone – policy people, patients, clinicians, administrators, businesses – optimize for the world as it changes. Nowhere is that more...
by Jessie Gruman | Jun 16, 2011
RA Warrior Kelly Young inquires in a post on Dr. Howard J. Luks’ blog. Dr. Bryan Vartebedian of 33 Charts adds his answer in a post on Better Health. What do you think: Are there lines that patients shouldn’t cross?
by Kathleen O'Malley | Jun 14, 2011
This guest post by SPM member Ellen Hoenig Carlson was inspired by a study on the prevalence of medical errors, published in the April issue of Health Affairs. Medical errors are one of the nation’s leading causes of death and injury. The famed 1999 Institute of...
by e-Patient Dave | Jun 7, 2011
This guest post by SPM member Peter Schmidt is long overdue. I asked him to write it months ago after discussion on our post Tips for Understanding Studies (Health News Review). Apologies for the delay. If you’d like to submit a guest post, see our guidelines. I...
by Jessie Gruman | Jun 6, 2011
It is often difficult for adults to give their doctors full and accurate accounts of their illness. Doing so can be even more of a challenge for kids. Here is an interesting experiment in which adolescents were given video cameras to capture their experience with...
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