by Susannah Fox | May 25, 2011
Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize...
by Jessie Gruman | May 20, 2011
In this vivid talk [start at 5:05], Dr. Victor Montori of the Mayo Clinic tells about what one of his patients must do to address his high blood pressure, diabetes, his weight and the events in his life that compete for his attention. He describes how...
by Susannah Fox | May 12, 2011
Here it is: my 2010-11 yearbook! Will you sign it? That’s how I feel about this latest report from the Pew Internet Project and the California HealthCare Foundation: “The Social Life of Health Information, 2011.” It contains all the insights...
by Susannah Fox | May 11, 2011
The Pew Internet Project and California HealthCare Foundation will released our latest report on the internet’s impact on health and health care tonight at midnight (Eastern U.S. time). It is titled, “The Social Life of Health Information, 2011” (and...
by David Harlow | May 3, 2011
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan...
by John M. Grohol, Psy.D. | Apr 12, 2011
While doing some research the other day on personal health records (PHRs), I came across this article, describing Revolution Health’s announcement — without much media attention — about dropping its PHR at the beginning of 2010. (Disclosure: I worked...
by David Harlow | Apr 1, 2011
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll...
by Cheryl Greene | Mar 25, 2011
Three years ago our family was faced with a difficult decision. What is the best care for our mother? We toured all the possible local options, but when it came down to it, there was only one facility* willing to take my mother due to the advanced state of her...
by e-Patient Dave | Mar 22, 2011
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...
by John M. Grohol, Psy.D. | Mar 5, 2011
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog,...
by e-Patient Dave | Mar 1, 2011
Noted patient activist Dale Ann Micalizzi, founder of Justin’s HOPE (blog), has just been named co-chair of the 2011 Forum of the Institute of Healthcare Improvement (IHI). The IHI Forum is a major international healthcare event, with over 5,000 people attending...
by e-Patient Dave | Feb 24, 2011
EMR and HIPAA is a great blog about health IT technology – well written, thoughtful, with personality. But I disagreed today with a post about the huge HIMSS conference (Health Information Management Systems Society) that ends today in Orlando. John wrote that...
by David Harlow | Feb 23, 2011
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into “meaningful use.” It begins with the anecdote I’ve blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some...
by e-Patient Dave | Feb 15, 2011
We in the “open health” community need to add to this new wiki. Who’s better than the Society for Participatory Medicine?? Specifically: Last week Aman Bhandari (@GHIdeas – Global Health Ideas) tweeted about something that’s exciting...
by e-Patient Dave | Feb 2, 2011
This page is obsolete. For blog posts, see the https://participatorymedicine.org/epatients/GuestPosts page. Articles for our Journal of Participatory Medicine: see guidelines here.
by Susannah Fox | Feb 1, 2011
This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to...
by e-Patient Dave | Jan 30, 2011
Researching recently I wound up looking at where we were two years ago –Â February 2009, just as the Society for Participatory Medicine (SPM) was forming. Fascinating to see what topics were live then and are still relevant today – this community has...
by e-Patient Dave | Jan 24, 2011
Click the image to view the letter we submitted last week to ONC, commenting on the December 10 report of the President’s Council of Advisors on Science and Technology (PCAST) about health IT. The response was driven by SPM policy chair David Harlow and approved...
by e-Patient Dave | Jan 20, 2011
Thanks to friends Kavita Patel and Brian Ahier for pointing out this sign of shifting winds, in yesterday’s Time online:Â Googling Symptoms Helps Patients and Doctors. It’s a watershed moment, because the last physician column I saw on this was the...
by e-Patient Dave | Jan 14, 2011
Update 3 pm ET: Thanks to Gilles Frydman for pasting in, in a comment below, the BMA’s actual statement, which as he says isn’t nearly as paternalistic as I thought from reading the BMJ piece. Need to discuss how this happened. _______ According to...
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