by Susannah Fox | Nov 24, 2010
Can you and your loved ones answer 5 questions about the end of life? Alex Drane, founder of Engage With Grace, explains why Thanksgiving is a good time to talk about these issues: If you have thoughts to share about Engage With Grace, end-of-life decisions, or...
by Susannah Fox | Nov 23, 2010
What’s the point of all this technology if it doesn’t motivate behavior change? That’s what we debated almost a year ago and now I’d like to bring up the same question, but with a few more examples. If you have time, I highly recommend watching...
by e-Patient Dave | Oct 28, 2010
We talk a lot here about taking, owning, or reclaiming responsibility for our health and its care. If we ever update the e-patient white paper I want to include an area where we’re sometimes robbed of control at the most intimate time: death, and the months and...
by Peter Frishauf | Oct 20, 2010
A new commentary on “Lies, Damned Lies, and Medical Science,” in the current issue of The Atlantic Monthly. [See also our previous post on the article, with dozens of comments, some of them excellent. And be sure to read Peter’s footnotes. -e-Patient Dave]...
by Roni Zeiger | Oct 14, 2010
Because I’m a doctor and I know a lot of people in the health care space, people ask me all the time for referrals. A friend with a newly diagnosed autoimmune disease, a loved one with a terrifying cancer sentence – who should I talk to?? I used to depend on the...
by Gilles Frydman | Oct 5, 2010
I’m sure that got your attention! But that is exactly Regina’s message: We are all patients . Both collectively and individually we are the most important and the most silent stakeholder of the healthcare system. To discuss the expanding role of the patient...
by Gilles Frydman | Sep 14, 2010
The New England Journal of Medicine’s Health Policy and Reform just published an opinion piece about the first public release of online report cards regarding 221 of the 1,100 US cardiac surgery programs. The authors believe that this event will fuel the debate...
by John M. Grohol, Psy.D. | Sep 1, 2010
A friend of mine, Ms. S., recently had an unsettling experience with a company called Caremark (the parent company of pharmacy CVS), whom she fills her prescriptions through. She was reordering a prescription refill she buys through the mail, and needed to pay for it....
by Roni Zeiger | Aug 17, 2010
When you have a doctor’s appointment, and she makes some notes and later formalizes them for your medical record, would you like read them? There’s been debate over the years about whether patients should read the notes that doctors write about them and their health...
by e-Patient Dave | Jul 25, 2010
Next in our series, Mark Boguski, MD, PhD is both a personal and a corporate member, as co-founder with Dr. Alan Littleford of ResoundingHealth. If you’d like to submit your own reason, write to me. (This is not an “invitation only” series –...
by Susannah Fox | Jul 15, 2010
Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of...
by e-Patient Dave | Jul 4, 2010
How fitting for the Fourth – a year after our Declaration (see below), I just received my renewal notice for the Society for Participatory Medicine. Here’s a Doctor’s Channel interview, posted a year ago today, in which Society co-chair Alan Greene...
by e-Patient Dave | Jun 27, 2010
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.) Not only are statistics often misinterpreted; even when they’re correctly understood,...
by e-Patient Dave | Jun 12, 2010
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar – Kramer...
by Gilles Frydman | Jun 9, 2010
This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...
by Gilles Frydman | May 24, 2010
It may be time to mention again the definition of Participatory Medicine: Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full...
by e-Patient Dave | May 20, 2010
In my May 5 keynote at the ICSI / IHI Colloquium, one of my slides said “Empower the young.” It cited David Blumenthal MD, National Coordinator for health IT at the Dept of Health & Human Services. I’d recently heard him say, “At...
by e-Patient Dave | May 8, 2010
This is an essay I (mostly) wrote April 28 on Vince Kuraitis’s e-Care Management Blog, part of his series with David Kibbe MD about the Federal EMR incentives, titled “Is HITECH Working?” The series is, in my opinion, the most useful update...
by e-Patient Dave | Apr 25, 2010
We’re long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: “The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in...
by e-Patient Dave | Apr 25, 2010
Actor Dennis Quaid has produced an outstanding, informative, empowering and motivating CME* program, “Chasing Zero: Winning the War on Healthcare Harm.” It’s on the Discovery Channel. Part 1 is here. This is the best-produced material I’ve seen...
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