by e-Patient Dave | Feb 24, 2010
As I’ve noted recently, this Thursday I’m on a stakeholder panel at a meeting of the Adoption/Certification Workgroup, which is part of the Federal Health IT Policy Committee. As noted in my previous post, this is a busy day, and each of us gets only 5-7...
by e-Patient Dave | Feb 20, 2010
I wrote last Wednesday about some background material for a panel I’ll be attending Thursday, as part of the government’s process to encourage adoption of electronic medical records. In the current administration all such discussions are wide open to the...
by e-Patient Dave | Feb 19, 2010
Denny Porter is executive-in-residence at the HIMSS Foundation, Institute for e-Health Policy. I met him in Washington last month at the eHealth Initiative’s annual conference, where I was on a panel. Great guy, and I love this proposal: a Federal Health Records...
by e-Patient Dave | Feb 18, 2010
I’d like your help preparing thoughts and testimony for a policy meeting I’ve been invited to attend in Washington next week. For these meetings, one needs to submit prepared remarks in advance, for the committee to digest in advance. And from what...
by e-Patient Dave | Jan 2, 2010
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
by e-Patient Dave | Dec 27, 2009
The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a...
by e-Patient Dave | Dec 18, 2009
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement’s “WIHI” series hosted a terrific webcast on the Open Notes project that’s being funded by the Robert Wood Johnson Foundation. (I need...
by e-Patient Dave | Dec 15, 2009
Yesterday I attended “How Access to Information Can Empower Patients and their Caregivers,” conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no...
by e-Patient Dave | Nov 15, 2009
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added)...
by Danny Sands, MD | Nov 9, 2009
For most people, their impetus to be actively engaged in healthcare comes from an experience with serious illness—either their own or a loved one’s. My journey into participatory medicine began during my internal medicine residency at Boston City Hospital, a public...
by e-Patient Dave | Sep 27, 2009
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have...
by Susannah Fox | Sep 25, 2009
That’s a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want...
by John M. Grohol, Psy.D. | Sep 18, 2009
I hear it time and time again in the e-health industry: “If only we had everyone on an electronic medical record, all of our security and privacy issues would be solved!” Really? Perhaps I should introduce you to a little something psychologists like to...
by Susannah Fox | Sep 17, 2009
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help....
by e-Patient Dave | Sep 15, 2009
Actor Dennis Quaid has become an advocate for electronic medical records. In 2007 his 12 day old twins received a massive accidental overdose (10,000 units of heparin instead of 10 units), a near-fatal error that could have been prevented by the kind of bar code...
by e-Patient Dave | Aug 6, 2009
I’m not making this up; it’s a wonderful thing. MassMEDIC, the Massachusetts Medical Device Industry Council, is looking at the future of “connected health” devices. They’ve got a survey that’s been given to all kinds of industry...
by e-Patient Dave | Jul 15, 2009
Important addition 7/16/09 6:40 pm EDT: Be sure to read the HIPAA clarification by commenter “SLC” below, and any subsequent discussion. Dorothy Tillman was requesting her aunt’s records, not her own. This doesn’t change the need (IMO), but it...
by e-Patient Dave | Jul 1, 2009
Tuesday night, endorsement #906 on HealthDataRights.org came from a Judy Beckman, who says: “I agree all the way I cannot get MY records unless I pay for MY records $1.00 per page WHY WHY these are MINE???????????” Indeed, why? Whose data is it, anyway? This spring...
by e-Patient Dave | Jun 19, 2009
Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was...
by Gilles Frydman | Jun 7, 2009
In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a...
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