by David Harlow | Nov 15, 2011
As you may recall, in September the federales issued proposed regulations that would make all lab results subject to the basic rule that all patient records should be provided to the patient upon request. See the post on e-patients.net explaining the proposed rule on...
by e-Patient Dave | Nov 7, 2011
“Patients are overwhelmingly interested in gaining rapid access to their notes … doctors have not experienced significant disruptions to their work.” Hear hear! That’s from a new commentary published Monday in Modern Healthcare about the...
by e-Patient Dave | Oct 20, 2011
An essential aspect of participatory medicine – and Federal meaningful use criteria – is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue...
by Kathleen O'Malley | Sep 15, 2011
E-Patient Dave’s post about the Green Button idea generated a lively and substantive discussion in the Comments section. The idea of making it easy for patients to anonymously share their data online for the benefit of research is apparently one whose time has...
by e-Patient Dave | Sep 10, 2011
This is a guest post by SPM member John Sharp, Manager of Research Informatics at the Cleveland Clinic. John gets it about how information empowers healthcare and e-patients. I first met him at Medicine 2.0 in Toronto, 2009, after which he wrote an article for our...
by e-Patient Dave | Sep 1, 2011
Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position. The issue is whether by...
by e-Patient Dave | Aug 9, 2011
I’m at the second face-to-face meeting of the Consumer Consortium of the National eHealth Collaborative, a gathering of 180+ stakeholder groups working on the consumer engagement aspect of health IT. Everyone talks about PHRs as Personal Health Records, but one...
by e-Patient Dave | Aug 2, 2011
The Society for Participatory Medicine recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a...
by e-Patient Dave | Jul 21, 2011
Update: The idea has advanced in the comments – be sure to read them. There’s a Twitter discussion bubbling right now about a “Green Button” idea that was proposed informally last year at HealthCamp SFBay. Here’s a link to our comments...
by Susannah Fox | Jul 19, 2011
Just in case anyone is curious: my notes from Health Foo, a meeting held last weekend in Cambridge, MA. It’s long, so skim for the 9 lessons if you want a shortcut. What: Foo Camp is an unconference, constructed on the spot by the people who show up, with just a...
by e-Patient Dave | Jul 11, 2011
I’m short on time so I haven’t scoured this paper in the Journal of Participatory Medicine, but even from a skim I’ll say it’s important news from the front lines. Implementing an Interoperable Personal Health Record in Pediatrics: Lessons...
by John M. Grohol, Psy.D. | Jun 25, 2011
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its...
by e-Patient Dave | Jun 23, 2011
This is a cross-post, plus commentary at end, starting with an item today by SPM member Alexandra Albin (@MsAxolotl, a frequent patient herself), from her blog: My life in the Bush of Doctors. It arose from a boiling discussion on the SPM member listserv. To...
by e-Patient Dave | Jun 4, 2011
John Moore at Chilmark Research has published another of his characteristically useful and insightful updates on health IT as he sees it. It’s here. A word about Chilmark: when I was considering how to make a new career, in healthcare, I noticed a gaping hole in...
by e-Patient Dave | May 24, 2011
One of the first posts on this blog that got wider attention was in March 2009: RateMDs.com: Medical Justice’s approach is “repulsive”: …a company called Medical Justice wants to help doctors avoid consumer ratings, by getting patients to sign an agreement...
by e-Patient Dave | May 22, 2011
The Society for Participatory Medicine was well represented last week at the 14th ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented: Jane...
by e-Patient Dave | May 13, 2011
The comments below add significant thoughts to what I said – be sure to read them. A lot of people are intrigued with using “cloud” applications and storage for personal health data. This week we’re seeing what I think is the final nail in the...
by e-Patient Dave | May 6, 2011
Guest post by medical transcriptionist Kathy Nicholls, member of the Society for Participatory Medicine. This idea grew out of a discussion on the SPM members listserv. To join, see instructions at bottom. The world of health care is filled with abbreviations....
by David Harlow | May 3, 2011
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan...
by e-Patient Dave | Apr 23, 2011
Over on his eCare Management blog, Vince Kuraitis (Twitter) is running a little (so far) series on “Rebuttal to PHR Luddites.” His discussion reveals that the term “PHR” (personal health record) means different things to different people; to...
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