by e-Patient Dave | Apr 16, 2012
One of the best-known sad stories in the e-patient movement is that of SPM member Regina Holliday, her husband Fred, and their two children. Fred died three years ago of kidney cancer in a series of failures of American healthcare, leaving a story that Regina now...
by e-Patient Dave | Mar 23, 2012
The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medical records. Their wizard Deven McGraw is widely recognized as one of the best authorities anywhere on HIPAA –...
by e-Patient Dave | Feb 27, 2012
At last week’s enormous HIMSS (health IT) conference, ONC (the Office of the National Coordinator for health IT) announced the long-awaited rules for Stage 2 of meaningful use. (These are the rules that must be met, for health IT systems to qualify for Federal...
by e-Patient Dave | Feb 15, 2012
Over on The Health Care Blog, John Lumpkin MD posted a good essay about the proposed ONC rules to let patients automatically see their lab test results. The SGIM Forum (newsletter of the Society for General Internal Medicine) ran a debate about it, and...
by e-Patient Dave | Jan 30, 2012
Well, SPM’s resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s on the...
by e-Patient Dave | Jan 24, 2012
Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn’t give you a sense of who is “the ultimate stakeholder” in health matters, nothing will. Remember, “patient” is not a third person word. Your time will...
by e-Patient Dave | Jan 22, 2012
Read to the end… Our man Hugo Campos (see Friday’s post) is becoming a media star! TEDx, then MIT Technology Review, now NPR’s “On The Media”! From SPM co-founder Joe Graedon, of People’s Pharmacy, on the SPM listserv – see...
by e-Patient Dave | Jan 20, 2012
We often say here “Gimme my damn data,” referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, “Nothing about me without me.” And where, we might ask, is that more vital...
by e-Patient Dave | Jan 18, 2012
My annual physical is this Friday. Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time: 1/17/2012 10:00:06 AM Read Date/Time: 1/18/2012 7:19:08 AM From: OpenNotes, Study...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by e-Patient Dave | Jan 3, 2012
Followers of our “gimme my data” series will get a rough-edged refresher about current reality by the well-written and raw story of @WilliamDale_MD’s Sunday post Medical Health Record: A Personal Journey Down the Rabbit Hole. A great narrative by a...
by Kathleen O'Malley | Dec 27, 2011
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable...
by e-Patient Dave | Dec 22, 2011
Update 6:33pm ET: the Storify feed wasn’t working. Should be fixed now. What a rocket ride it’s been for Xeni. Tuesday morning we reported on the BoingBoing co-editor’s unexpected breast cancer diagnosis 12/9, and her odyssey reading her scan data....
by e-Patient Dave | Dec 20, 2011
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist...
by e-Patient Dave | Dec 19, 2011
Important update: I just learned that the full text of these articles is open access! Thanks to the Annals for giving patients access to the text – since it is, after all, about patients see the information. OpenNotes article: “Inviting Patients to Read...
by Kathleen O'Malley | Dec 12, 2011
There’s no stopping an idea whose time has come. SPM member Nancy Finn (@NFinn8421), in the process of her own odyssey as a health care thinker, had an epiphany that strongly echoes the principles of the growing P4 Medicine movement (“predictive,...
by e-Patient Dave | Dec 12, 2011
Katie Matlack at SoftwareAdvice.com has posted an interactive timeline of EHR history. Interesting to see how things unfolded long ago. Note, too, two long-ago pivotal moments: The late 1960s introduction of Larry Weed, MD’s Problem-Oriented Medical Record,...
by e-Patient Dave | Nov 28, 2011
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal: Interview with Lawrence Weed, MD — The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know...
by e-Patient Dave | Nov 25, 2011
Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one. This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of...
by Kathleen O'Malley | Nov 21, 2011
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we’re adding it here, four days after the...
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