by Danny van Leeuwen | Nov 19, 2012
Danny van Leeuwen, Opa MPH RN CPHQ is a patient (Multiple Sclerosis), a caregiver, a nurse, and a leader. A version of this piece originally appeared on his blog, Health Hats. What do we e-Patients need in our electronic health records? Help by sharing in the...
by Ileana Balcu | Oct 22, 2012
Member Alicia Staley on the HIT Community (MA HI Community) blog with a great recount of the first EHR exchange in Massachusetts – it happened last week: https://www.thehitcommunity.org/2012/10/16596/
by e-Patient Dave | Oct 1, 2012
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to...
by e-Patient Dave | Aug 30, 2012
SPM member Brian Ahier @Ahier is one of the best known and most respected voices for patient engagement in the “health IT geek” world. He’s Health IT Evangelist for Information Systems at Mid-Columbia Medical Center in The Dalles, Oregon, which is a...
by Susan Woods | Aug 8, 2012
I’ve been in healthcare for awhile, yet must admit that a lot of information packaged for patients/consumers is pretty dry and not too creative. Content, often developed by health professionals or educators, can be medical-heavy and design-light. My litmus test when...
by Kathleen O'Malley | Aug 1, 2012
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...
by e-Patient Dave | Jul 24, 2012
Think everything in your medical record is spotless and flawless? Think again: almost everyone I know who’s checked their record has found flaws, omissions, orders that were never carried out. There’s a lot we can do, e-patients, engaged consumers, to...
by e-Patient Dave | Jul 17, 2012
As Meaningful Use rolls out, and providers are required to share data with us, there are a lot of concerns about whether their lives will spin out of control as patients besiege them with ignorant questions. We’ve discussed this in our many posts about the...
by e-Patient Dave | Jun 19, 2012
Shortcut: to respond to this Federal request, go to this post on the government’s blog. Update 9 a.m. 6/19: Josh Seidman, author of this post, says there’s no specific deadline; these comments will feed into HITPC )the Health IT Policy Committee), which...
by e-Patient Dave | Jun 12, 2012
I’ve received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around “Who owns your data?” And they asked, what are patients’ top five issues? Of course I have...
by Ileana Balcu | Jun 5, 2012
Member Keith Boone about the meeting at the White House with ONC and Regina Holliday, e-Patient Dave and others: http://motorcycleguy.blogspot.com/2012/06/secret-white-house-meetings-with.html Discussions were about giving data to patients, security, privacy,...
by e-Patient Dave | May 28, 2012
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
by e-Patient Dave | May 20, 2012
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
by e-Patient Dave | May 19, 2012
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he...
by e-Patient Dave | May 5, 2012
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell...
by e-Patient Dave | May 4, 2012
Cross-posted from the ICMCC blog, a post by its chairman, Lodewijk Bos, a Dutch cancer patient who is a great advocate for information, technology, and patient engagement. The ICMCC news feed is a terrific daily compilation of health IT news. A long-time advocate for...
by e-Patient Dave | May 3, 2012
I should have announced this long ago but I’ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It’ll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important,...
by e-Patient Dave | May 2, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] ____________ New, 11pm ET on May 2: See Regina Holliday’s addition at bottom. Evening addition: In a comment below, SPM policy...
by e-Patient Dave | Apr 30, 2012
In today’s Boston Globe, the cover story for the daily “G” magazine is “Record-Keeping 2.0,” by Chelsea Conaboy (@cconaboy). Subtitled “Medical care is shifting to electronic data files – but how safe is it?”, it’s...
by Kathleen O'Malley | Apr 26, 2012
SPM member Ken Farbstein sent us this invitation to help persuade the Office of the National Coordinator for Health Information Technology to include printed summaries of doctor visits in the ONC’s definition of meaningful use. After our pets go to the...
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