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Health Data is Useful… if it Informs Conversations

Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health.  He continues to see patients on occasional evenings and weekends at a local urgent care center.  Roni earned his MD at Stanford and completed his...

A Patient-Centric Definition of Participatory Medicine

Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...

Ahem. :-)

I am about to punk my well-known doctor. :–) Me being me, I just had my annual physical. Great visit and all that. Yesterday I got a letter about my lab results. My cholesterol and weight are trending unfavorably, so the good doctor said “you need to take...

Making Healthcare Better through Participatory Medicine

There’s new validation that participatory medicine is an idea whose time has come: the co-chairs of the Society for Participatory Medicine (my primary physician Dr. Danny Sands and I) are on this year’s list of 20 People Who Make Healthcare Better, an...

Why the Journal of Participatory Medicine?

Next week at the  Connected Health Symposium in Boston, the Society for Participatory Medicine will launch its new journal. In keeping with the society’s spirit of physician-patient partnership, the Co-Editors in Chief are a physician and a patient: Charlie...

An e-Patient is Born: Elyse Chapman’s story

One of the key learnings of my first year as a student of the e-patient movement, studying how healthcare is evolving, is this: People get radicalized when it gets personal. This is one such story: it’s the e-patient awakening of a long-time personal friend of...

Let’s hear it for the d-patient e-patients. :-)

Update 3/21: For easier reference, I’m editing this to incorporate some goodies from comments below. Here’s a little game that just might turn into something transformational. Since I started learning about this world of participatory medicine, I’ve...

Breaking News at Hematology Meeting – for Patients

Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and...

The Two Toms

Our dear friend, our brother, our hero, the inimitable Doc Tom, died on Good Friday 2006. Even though his untimely death came as a shock, Tom Ferguson had already far outlived the projections at the time of his Myeloma diagnosis over 15 years before. July 8 is Tom’s...

Information Therapy Conference

The Information Therapy conference just ended yesterday and my head is buzzing with a few favorite moments: 1) Josh Seidman’s speech connecting our venue, the Newseum, to his mission by talking about the history of the U.S. press, mail system, and medicine: the...

Randy Pausch, empowered patient / participatory medicine

Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally participatory care team: CT scans revealed I had pancreatic cancer, and it...

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