by e-Patient Dave | May 24, 2011
This isn’t directly involved with participatory medicine, unless you believe that a responsible patient wants to know the best way to do participatory health, and thus avoid the need for health care. Lower costs and keep your family out of the hospital –...
by e-Patient Dave | May 22, 2011
The Society for Participatory Medicine was well represented last week at the 14th  ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented: Jane...
by David Harlow | May 3, 2011
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan...
by e-Patient Dave | Apr 14, 2011
On April 21 I’ve been invited to testify again on behalf of patients at a meeting organized by the Office of the National Coordinator for health IT. Â As we did here twice last year, let’s discuss what the meeting should here. Here’s the document they...
by e-Patient Dave | Apr 6, 2011
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed...
by David Harlow | Apr 1, 2011
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll...
by Susannah Fox | Mar 24, 2011
On March 11, the White House hosted an event to mark National Women and Girls HIV/AIDS Awareness Day. The event was livestreamed from whitehouse.gov and is archived on YouTube: I have written before about the unique nature of conferences concerning...
by e-Patient Dave | Mar 21, 2011
Readers interested in health IT issues will want to know about today’s webcast at 1:00 ET, and the policy issue described here by SPM’s policy chair David Harlow (Twitter @HealthBlawg), from the SPM members listserv: There’s a significant announcement out...
by Susannah Fox | Mar 10, 2011
This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services We all struggle with complex health...
by Kathleen O'Malley | Mar 8, 2011
JoPM has just published Healthcare: A Human Rights and Economic Justice Issue, a commentary by SPM member Kathleen McCaffrey Friedman. Drawing on her experiences as an empowered patient, Friedman argues: “It ultimately falls to us, the patients, to frame health...
by John M. Grohol, Psy.D. | Mar 5, 2011
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog,...
by David Harlow | Feb 23, 2011
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into “meaningful use.” It begins with the anecdote I’ve blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some...
by e-Patient Dave | Feb 22, 2011
Our next guest post from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family’s intense personal e-patient story from 2009. Gangadhar has responded to his experience by becoming participatory, even seeing where we need to participate in...
by David Harlow | Feb 16, 2011
There is a growing recognition within the medical-industrial complex that the patient is a key element of the enterprise, and that patient satisfaction, patient experience, patient engagement, patient activation, patient-centeredness are very important. Some research...
by Susannah Fox | Jan 26, 2011
The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is,...
by e-Patient Dave | Jan 24, 2011
Click the image to view the letter we submitted last week to ONC, commenting on the December 10 report of the President’s Council of Advisors on Science and Technology (PCAST) about health IT. The response was driven by SPM policy chair David Harlow and approved...
by e-Patient Dave | Jan 14, 2011
Update 3 pm ET: Thanks to Gilles Frydman for pasting in, in a comment below, the BMA’s actual statement, which as he says isn’t nearly as paternalistic as I thought from reading the BMJ piece. Need to discuss how this happened. _______ According to...
by e-Patient Dave | Jan 13, 2011
A recurring theme on this blog is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true...
by e-Patient Dave | Jan 12, 2011
From Medscape Medical Ethics: Consequences aside, from a strictly ethical perspective, if a patient doesn’t realize that his physician made a mistake, should the physician fess up?… Before you jump to conclusions (as I did!), look at the article’s...
by e-Patient Dave | Jan 5, 2011
In December the Society for Participatory Medicine’s executive committee appointed health law attorney David Harlow to represent the Society in public policy matters. Regular readers of HealthBlawg::David Harlow’s Health Care Law Blog know what a...
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