by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
by e-Patient Dave | Dec 6, 2010
I’m at the annual IHI Forum in Orlando, in an all-day workshop (class photo at left) titled “Whose Care Is It, Anyway … and Can Health IT Help?” Laura Adams of the Rhode Island Quality Institute was just talking about the social obstacles to...
by Peter Frishauf | Dec 3, 2010
(To help you visualize the scene, see the famous Coca-Cola Santa image. Now imagine Peter Frishauf asking Santa for that train set!) Dear Santa, I always believed in you Santa. All those kids who said it wasn’t true, you weren’t real, well guess what: I knew you were....
by e-Patient Dave | Dec 2, 2010
A year ago Gangadhar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant issue through empowered, engaged research. As today’s guest post shows, he’s now actively engaged in...
by Susannah Fox | Nov 30, 2010
What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer...
by e-Patient Dave | Nov 29, 2010
Ted Eytan drew our attention to a real-time example of participatory thinking, in the case of his friend Matt, an engineer who’s recently been diagnosed with MS. His post This is what $8,000 worth of drugs looks like tells the story, including videos of two...
by e-Patient Dave | Nov 27, 2010
I’m preparing to participate next month in a seminar on shared decision making, and some homework led me to this government paper, published in July: Equity & Excellence: Liberating the NHS (PDF, 339k). I must not have been paying attention to my UK friends...
by Jon Lebkowsky | Nov 26, 2010
I spoke recently at a summit organized by Consumers Union’s Safe Patient Project, and learned in detail about the persistence and prevalence of hospital-acquired infections and other safety risks. Hospitals are not as safe as they should and could be, and...
by e-Patient Dave | Nov 15, 2010
Update the next afternoon: be sure to read the comments, with important updates as the conversation continues. Bulletin – I just learned about this tonight: Last Friday the board of the American Medical Informatics Association (AMIA) published a position paper...
by e-Patient Dave | Nov 12, 2010
Last week, the morning after the mid-term elections, the Disruptive Women in Health Care blog co-hosted an event at the National Press Club to discuss the election’s impact on health reform. They’ve just posted the video of the first hour’s panel,...
by e-Patient Dave | Oct 28, 2010
We talk a lot here about taking, owning, or reclaiming responsibility for our health and its care. If we ever update the e-patient white paper I want to include an area where we’re sometimes robbed of control at the most intimate time: death, and the months and...
by Peter Frishauf | Oct 20, 2010
A new commentary on “Lies, Damned Lies, and Medical Science,” in the current issue of The Atlantic Monthly. [See also our previous post on the article, with dozens of comments, some of them excellent. And be sure to read Peter’s footnotes. -e-Patient Dave]...
by Gilles Frydman | Sep 14, 2010
The New England Journal of Medicine’s Health Policy and Reform just published an opinion piece about the first public release of online report cards regarding 221 of the 1,100 US cardiac surgery programs. The authors believe that this event will fuel the debate...
by John M. Grohol, Psy.D. | Sep 1, 2010
A friend of mine, Ms. S., recently had an unsettling experience with a company called Caremark (the parent company of pharmacy CVS), whom she fills her prescriptions through. She was reordering a prescription refill she buys through the mail, and needed to pay for it....
by Peter Frishauf | Aug 26, 2010
We welcome Peter Frishauf as an author on our blog. Peter is on the Editorial Board [brief bio] of our Society’s Journal of Participatory Medicine, and as described below, has already authored some important material on this subject. His first post here is...
by Roni Zeiger | Aug 17, 2010
When you have a doctor’s appointment, and she makes some notes and later formalizes them for your medical record, would you like read them? There’s been debate over the years about whether patients should read the notes that doctors write about them and their health...
by e-Patient Dave | Aug 8, 2010
Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio. This item has nothing to do with OpenNotes itself – it’s what I’m seeing now that I’ve started accessing my...
by e-Patient Dave | Jul 21, 2010
I ran across a graphic today that warmed my heart: Recognize that agenda? (Click to enlarge if you want more clarity.) Sure is a lot of what we’ve discussed. Pie in the sky, tough hill to climb, nice idea but not feasible, right? Wrong. Thursday I’m at a...
by e-Patient Dave | Jul 20, 2010
Gary Wolf of Wired has posted a whizbang write-up that came out of a whirlwind one-hour 12-way Skype chat about personal health data. Sound frenetic? It was. (I participated. It was, well, 12-way.) I can’t imagine how to model what happened, except to say that...
by e-Patient Dave | Jul 19, 2010
At last Tuesday’s announcement of the Meaningful Use rules, many people asked for the slides. After going through clearances, they arrived today. Click for 44 page PDF (649k). Correction 12:19pm ET 7/19: the PDF has been replaced with a PowerPoint, which we...
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