By e-Patient Dave | November 24, 2019
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she... 
By Ileana Balcu | November 20, 2019
Jane Sarasohn-Kahn makes a compelling argument at how important it is to think about all aspects of health, not just the healthcare system in her most recent blog post: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the... 
By e-Patient Dave | November 19, 2019
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to... 
By e-Patient Dave | November 1, 2019
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s... 
By Amber Soucy, MSN RN | October 31, 2019
In 2009, the Society for Participatory Medicine was created to continue the work of “Doc Tom” Ferguson (1943-2006), the founder of the e-patient movement and a true visionary who foresaw decades ago that “e-patients” (empowered, engaged, equipped, enabled)... 
By Amber Soucy, MSN RN | October 14, 2019
Hello, SPM members! – And honored guests, perhaps soon to be members. Join here. :-) Over the past few weeks, I have received quite a few inquiries about livestreaming opportunities for our conference in Boston, Tuesday, October 15. If you can’t attend... By Amber Soucy, MSN RN | September 9, 2019
Our Society’s 2nd Annual “Doc Tom” Awards are now open for nominations! Spread the word, and join us at our annual conference on October 15 for the announcement of our award recipients! Doc Tom Ferguson was the founder of the e-patient movement. To promote his values,... 
By Narinder Singh | July 16, 2019
This is Part 1 of a four part series, introduced yesterday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [Download the Complete Family’s Guide as a PDF] Even the air in the waiting... 
By e-Patient Dave | April 5, 2019
SPM member Jeanne Pinder has spent years crusading for price transparency with her startup ClearHealthCosts. She’s formed partnerships with WHYY in Philadelphia, been on CBS News, won awards for investigative journalism with NOLA.com and Fox 8’s... 
By Michael Millenson | November 9, 2018
Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting...
“My Data and Me”: Brenda Denzler’s amazing story at #FHIRDevDaysNovember 24, 2019
A Romanticised History of SPMNovember 23, 2019
Jane Sarasohn-Kahn: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the HealthXL Global GatheringNovember 20, 2019
“Training medical students how to communicate with E-patients”November 19, 2019
ConservatorsNovember 15, 2019
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