by e-Patient Dave | Mar 8, 2021 |
Time for change! The theme of our 2019 conference was #Time4Change. This post kicks off a major 2021 campaign for our Society: the Participatory Medicine Manifesto. At that event we took action: in a design-thinking exercise, attendees crowdsourced the ideas that have...
by e-Patient Dave | Dec 10, 2020 |
As regular readers know, our Society for Participatory Medicine has always been a strong advocate for the OpenNotes movement as a key enabler of patient power. As co-founder Dr. Danny Sands often says in his speeches, “How can patients participate if they...
by e-Patient Dave | May 12, 2020 |
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve...
by e-Patient Dave | Mar 9, 2020 |
The long-awaited rules on data access have been published this morning from two key parts of the US Department of Health & Human Services. I’ll expand this post with more links as we digest what’s been offered and will unfold in the coming week. The...
by e-Patient Dave | Feb 28, 2020 |
Now this is patient-centered care. This may be the most wonderful participatory innovation I’ve seen since OpenNotes in 2012. This one’s completely different: OpenNotes is about patient access to the medical record, but this one invites patients to see...
by e-Patient Dave | Nov 24, 2019 |
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she...
by Ileana Balcu | Nov 20, 2019 |
Jane Sarasohn-Kahn makes a compelling argument at how important it is to think about all aspects of health, not just the healthcare system in her most recent blog post: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the...
by e-Patient Dave | Nov 19, 2019 |
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to...
by e-Patient Dave | Nov 1, 2019 |
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s...
by e-Patient Dave | Oct 31, 2019 |
In 2009, the Society for Participatory Medicine was created to continue the work of “Doc Tom” Ferguson (1943-2006), the founder of the e-patient movement and a true visionary who foresaw decades ago that “e-patients” (empowered, engaged, equipped, enabled)...
Pay Attention to the Symptoms, but Don’t Ignore the PatientJuly 29, 2021
Video Series: Doctor to DoctorJuly 22, 2021
Seeing Red about Pink EyeJuly 20, 2021
Boost Health IT’s Impact: Think With a Participatory LensJuly 14, 2021
Participation starts with understanding goals, values and preferencesJuly 3, 2021
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