by e-Patient Dave | May 12, 2020 |
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve... 
by e-Patient Dave | Mar 9, 2020 |
The long-awaited rules on data access have been published this morning from two key parts of the US Department of Health & Human Services. I’ll expand this post with more links as we digest what’s been offered and will unfold in the coming week. The... 
by e-Patient Dave | Feb 28, 2020 |
Now this is patient-centered care. This may be the most wonderful participatory innovation I’ve seen since OpenNotes in 2012. This one’s completely different: OpenNotes is about patient access to the medical record, but this one invites patients to see... 
by e-Patient Dave | Nov 24, 2019 |
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she... 
by Ileana Balcu | Nov 20, 2019 |
Jane Sarasohn-Kahn makes a compelling argument at how important it is to think about all aspects of health, not just the healthcare system in her most recent blog post: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the... 
by e-Patient Dave | Nov 19, 2019 |
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to... 
by e-Patient Dave | Nov 1, 2019 |
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s... 
by e-Patient Dave | Oct 31, 2019 |
In 2009, the Society for Participatory Medicine was created to continue the work of “Doc Tom” Ferguson (1943-2006), the founder of the e-patient movement and a true visionary who foresaw decades ago that “e-patients” (empowered, engaged, equipped, enabled)... 
by e-Patient Dave | Oct 14, 2019 |
Hello, SPM members! – And honored guests, perhaps soon to be members. Join here. :-) Over the past few weeks, I have received quite a few inquiries about livestreaming opportunities for our conference in Boston, Tuesday, October 15. If you can’t attend... by e-Patient Dave | Sep 9, 2019 |
Our Society’s 2nd Annual “Doc Tom” Awards are now open for nominations! Spread the word, and join us at our annual conference on October 15 for the announcement of our award recipients! Doc Tom Ferguson was the founder of the e-patient movement. To promote his values,...
SPM & Health Story Collaborative Join Forces: Please Share Your Stories During the PandemicMay 19, 2020
NEJM: OpenNotes/”OurNotes” releases its innovative pre-visit questionnaire for COVID-19 televisitsMay 12, 2020
A nurse writes from the COVID-19 front lines: “the biggest barrier to care I’ve ever faced”May 7, 2020
Health informatics and why participatory healthcare is key to its futureApril 9, 2020
Web introduction to a crowd-sourcing platform for COVID-19 “information therapy”March 19, 2020
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