By Ileana Balcu | January 14, 2014
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused... By e-Patient Dave | January 13, 2014
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was... By e-Patient Dave | January 1, 2014
The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to... By Casey Quinlan | November 22, 2013
Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement... By Susannah Fox | October 21, 2013
A cross-post from susannahfox.com… On Friday, I spoke at the Albert Einstein College of Medicine, along with Kevin Pho, MD. During a planning call, the symposium organizers had shared results from a faculty survey: Fully two-thirds do not use social tools on a... By Ileana Balcu | October 10, 2013
We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care... By Ileana Balcu | September 11, 2013
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,... By Kathleen O'Malley | June 5, 2013
This guest post was written by Lisanne St. Onge Klute and originally appeared on The Story of iPatchman, a blog for e-patients with brain tumors. It is a great example of the power of social media for helping e-patients find the best treatment. Thanks to Akiva... By Eve Harris | May 1, 2013
SPM member Jody Schoger’s post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest... By Ileana Balcu | March 20, 2013
Please join us for a tweetchat this evening – Wednesday March 20 at 8 PM ET/ 5PM PT. We’ll talk about: What’s new with Gimme my DAM Data #gmdd ? – Wall Street Journal picked the story at SXSW conference...
“My Data and Me”: Brenda Denzler’s amazing story at #FHIRDevDaysNovember 24, 2019
A Romanticised History of SPMNovember 23, 2019
Jane Sarasohn-Kahn: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the HealthXL Global GatheringNovember 20, 2019
“Training medical students how to communicate with E-patients”November 19, 2019
ConservatorsNovember 15, 2019
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