e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Participatory Medicine Learning Exchange: How Are We Moving the Needle?
We are each individually advancing the participatory medicine movement in our day-to-day lives and interfaces with healthcare and/or our work. Understanding the work we are conducting within our individual silos can help us learn from one another, allow us to build...
Why We Are Losing the Battle Against Infectious Disease
Antibiotics and similar drugs, called antimicrobial agents, have been used successfully for the last 70 years to treat patients who have infectious diseases. However, these drugs have been used so widely and for so long, that the infectious organisms the antibiotics...
Imagine if You Could Cut Through the Clutter With a Health GPS
Spearheaded by Vice President Joseph Biden, the White House Cancer Moonshot Task Force was created to double the rate of progress in cancer research and treatment, striving to accelerate what could be achieved in ten years in just five. Earlier this week, Vice...
We’re partnering to support The Big Heist!
The Society of Participatory Medicine (SPM) is excited to announce that we're partnering with The Big Heist to accelerate building a Health 3.0 world, where patients actively participate and are empowered to control and improve their care. The Big Heist will be a...
From Regina Holliday’s blog: on Patient Advocacy
Beautiful and comprehensive blog post from Regina Holliday about different types of patient advocates, the evolution of the patient as speaker, consumer, policy-igniter and her own work....
Last call: Vote for patient activists (and more) at Health 2.0 next week
In July we invited you to vote on a large group of patient activists, to select finalists in Health 2.0 conference's tenth annual conference: Health 2.0: first conference to offer Patient Activist awards. Vote! What a gathering this will be: travel expenses for the...
e-Patient alert: “Are sites like WebMD healthful?” Dive in on NYTimes debate
Thanks to @SusanCarr, the highly patient-centered editor of Patient Safety & Quality Healthcare, for this tipoff this morning. I only have time right now to post this & run out the door. Click the image to visit the piece on the Times site, but first,...
Sips with the Society: SPM Receptions at Health 2.0 and Connected Health Summit
As the sweet days of summer 2016 start to wane, it's time to make plans to attend key fall conferences. This year, the Society for Participatory Medicine is hosting Sips With The Society - meet and great receptions at Health 2.0 in Santa Clara and the Connected Health...
OpenNotes hits TEN MILLION patient level
As regular readers know, for years we've been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, "Doctors and patients on the same page," is...
How can we cope with uncertainty?
We've written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things aren't...
e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal
We'd love to start a list of other patient-authored papers and posters - let us know in the comments! We know of Dana M. Lewis & Scott Leibrand's poster about #OpenAPS in June - who else?? We've written before about e-patient Sean Ahrens and the Crohnology...
Cleo Kordomenos: How My Opinion on Online Health Communities Changed
This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey...
