e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
#DocTom10: Foreword by Pew Research – astounding statistics from Y2K
Next in our #DocTom10 series, which started here. Today we resume our review of the chapters of Tom's White Paper. This Foreword stands on its own, with no comment needed, so we'll just paste it in verbatim. Note: these numbers are from 2000, when the Web was just six...
Susannah Fox: Tom’s legacy #DocTom10
Next in our #DocTom10 series, which started here. This is a blessing - the first post here in two years by Susannah Fox. More about this at the end of the post - for now, let's get to the good stuff. She originally posted this as a comment on Friday's post by John...
Warmly Remembering Tom Ferguson & His Legacy #DocTom10
Next in our #DocTom10 series, which started here. I first met Tom Ferguson in 1994 online (where else?) when he reached out via email to chat about online support groups. I was still in graduate school at the time, and he had come across my indexes of Internet...
Remembering Tom’s death 10 years ago today: #DocTom10, post 4
Next in our #DocTom10 series, which started here. Ten years ago today, Tom Ferguson died unexpectedly. He was in the hospital at the University of Arkansas for Medical Sciences (UAMS), being treated for multiple myeloma. Tom's work back then was captured on his...
#DocTom10, post 3: The preface and the paradigm
Third in our #DocTom10 series, which started here. Yesterday I asked that you download Ferguson's white paper, the manifesto he was working on when he died unexpectedly, ten years ago tomorrow. Today we'll look at the preface. The lost section: questioning the...
#DocTom10, post 2: Please download the White Paper / Libro Blanco
Yesterday, in Honoring the memory of “Doc Tom” Ferguson, ten years after his death, we started a series of posts to mark his untimely demise and look back on his work. As we noted, at his death he was working on a project funded by Robert Wood Johnson's Pioneer...
Honoring the memory of “Doc Tom” Ferguson, ten years after his death
"Doc Tom" Ferguson, the source of our Society for Participatory Medicine, died unexpectedly ten years ago this week, April 14, 2006. In the coming days we'll run a series of posts remembering his work and vision. Especially, we're going to walk through the seminal...
Sara Riggare: “The new kind of patients challenge healthcare”
SPM member Sara Riggare is a PhD student at Karolinska Institutet in Stockholm and a member of the BMJ's Patient Advisory Panel. She has Parkinson Disease, and is highly proactive in dealing with it. One thing some Parkinson patients do is non-contact boxing, e.g. the...
National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient
Somehow I'd never heard of National Doctors' Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I'm in! And I want to shine a broader spotlight on the wider class called...
How I became an e-patient: through practice, with coaching (using Lean on the patient side)
The next in our series of "How I became an e-patient" posts. Tyson Ortiz joined a few months ago, having been introduced to us by fellow Lean practitioner Mark Graban. His story weaves together two concurrent threads: learning about a new aspect of Lean, and the...
Curiosity Got These Cats Their Health Data – from GetMyHealthData
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data - it's yours! Here's the whole GIF-rich party. Cats have nine lives to figure out how to get their health data, but you...
A hackathon for Open Access?? Check it out!
We've often written here about open access medical literature (freely available) vs "paywalled" journals. It's a controversial subject, and this guest post is about an idea I've never heard of: a hackathon to explore the subject. (In the cartoon, "impact factor"...
