e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
#DocTom10, post 3: The preface and the paradigm
Third in our #DocTom10 series, which started here. Yesterday I asked that you download Ferguson's white paper, the manifesto he was working on when he died unexpectedly, ten years ago tomorrow. Today we'll look at the preface. The lost section: questioning the...
#DocTom10, post 2: Please download the White Paper / Libro Blanco
Yesterday, in Honoring the memory of “Doc Tom” Ferguson, ten years after his death, we started a series of posts to mark his untimely demise and look back on his work. As we noted, at his death he was working on a project funded by Robert Wood Johnson's Pioneer...
Honoring the memory of “Doc Tom” Ferguson, ten years after his death
"Doc Tom" Ferguson, the source of our Society for Participatory Medicine, died unexpectedly ten years ago this week, April 14, 2006. In the coming days we'll run a series of posts remembering his work and vision. Especially, we're going to walk through the seminal...
Sara Riggare: “The new kind of patients challenge healthcare”
SPM member Sara Riggare is a PhD student at Karolinska Institutet in Stockholm and a member of the BMJ's Patient Advisory Panel. She has Parkinson Disease, and is highly proactive in dealing with it. One thing some Parkinson patients do is non-contact boxing, e.g. the...
National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient
Somehow I'd never heard of National Doctors' Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I'm in! And I want to shine a broader spotlight on the wider class called...
How I became an e-patient: through practice, with coaching (using Lean on the patient side)
The next in our series of "How I became an e-patient" posts. Tyson Ortiz joined a few months ago, having been introduced to us by fellow Lean practitioner Mark Graban. His story weaves together two concurrent threads: learning about a new aspect of Lean, and the...
Curiosity Got These Cats Their Health Data – from GetMyHealthData
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data - it's yours! Here's the whole GIF-rich party. Cats have nine lives to figure out how to get their health data, but you...
A hackathon for Open Access?? Check it out!
We've often written here about open access medical literature (freely available) vs "paywalled" journals. It's a controversial subject, and this guest post is about an idea I've never heard of: a hackathon to explore the subject. (In the cartoon, "impact factor"...
Don Berwick wants healthcare to take it to the limit, with Patients as Peers
https://www.youtube.com/watch?v=H2SoHLHufv4 Decades ago, there began a rigorous effort to tackle health care problems by focusing on science, improvement and measurement. A prominent driver of all things related to practice betterment has been The Institute of...
Pharma TV ads: Film at 11
SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, "Patient Leaders Want To Kill Pharma TV Ads, Right Now," at the 2016 ePharma Summit in New York last week (February 29 through March 2). This...
SPM survey results at HIMSS: “Patients want to be involved with their health information”
It's time again for the gigantic (50,000 people) HIMSS trade show - the Health Information Management Systems Society, in Las Vegas this year. These new SPM slides (on Slideshare) will be shown in the Consumer Engagement zone, summarizing our two surveys on what...
The Precision Medicine Initiative, Patients’ Health Data Rights and You
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
