e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Sara Riggare: “The new kind of patients challenge healthcare”
SPM member Sara Riggare is a PhD student at Karolinska Institutet in Stockholm and a member of the BMJ's Patient Advisory Panel. She has Parkinson Disease, and is highly proactive in dealing with it. One thing some Parkinson patients do is non-contact boxing, e.g. the...
National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient
Somehow I'd never heard of National Doctors' Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I'm in! And I want to shine a broader spotlight on the wider class called...
How I became an e-patient: through practice, with coaching (using Lean on the patient side)
The next in our series of "How I became an e-patient" posts. Tyson Ortiz joined a few months ago, having been introduced to us by fellow Lean practitioner Mark Graban. His story weaves together two concurrent threads: learning about a new aspect of Lean, and the...
Curiosity Got These Cats Their Health Data – from GetMyHealthData
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data - it's yours! Here's the whole GIF-rich party. Cats have nine lives to figure out how to get their health data, but you...
A hackathon for Open Access?? Check it out!
We've often written here about open access medical literature (freely available) vs "paywalled" journals. It's a controversial subject, and this guest post is about an idea I've never heard of: a hackathon to explore the subject. (In the cartoon, "impact factor"...
Don Berwick wants healthcare to take it to the limit, with Patients as Peers
https://www.youtube.com/watch?v=H2SoHLHufv4 Decades ago, there began a rigorous effort to tackle health care problems by focusing on science, improvement and measurement. A prominent driver of all things related to practice betterment has been The Institute of...
Pharma TV ads: Film at 11
SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, "Patient Leaders Want To Kill Pharma TV Ads, Right Now," at the 2016 ePharma Summit in New York last week (February 29 through March 2). This...
SPM survey results at HIMSS: “Patients want to be involved with their health information”
It's time again for the gigantic (50,000 people) HIMSS trade show - the Health Information Management Systems Society, in Las Vegas this year. These new SPM slides (on Slideshare) will be shown in the Consumer Engagement zone, summarizing our two surveys on what...
The Precision Medicine Initiative, Patients’ Health Data Rights and You
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
Why I joined SPM – and why maybe you should!
Guest post by John Hoben, who joined our Society in 2014 and has been a major contributor to discussions on our member listserv. He recently joined our board of directors. He has a particularly great story - he actually met Doc Tom long ago! - and I asked him to...
Meet Donna Cryer, new co-chair of SPM
At 10 ET today (Feb 25) Donna will be a guest at the White House Precision Medicine Initiative, with several other members of our Society. Watch it on livestream. See also our post on the PMI event a year ago by then-president Nick Dawson. I’m thrilled to announce...
Join the #ScopeScope, March 1, to help Fight Colorectal Cancer
This is a hoot. I say this as someone who first blogged in 2008 about this process. On Tuesday March 1, Mayo Clinic will be streaming video of a colonoscopy, live on Periscope, in a broadcast they’re calling The #ScopeScope. Lee Aase, head of the Mayo Clinic Social...