e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
(Video) Larry Weed, father of the Problem Oriented Medical Record – Grand Rounds, 1971
Students of medicine (surely most MDs) will know the name Larry Weed, but I didn't until a few years ago on this blog, when I learned that in 1999 our founder "Doc Tom" Ferguson gave Weed an Outstanding Achievement Award. In the late 1960s Dr. Weed created the concept...
Health Affairs – Narrative Matters: Suzanne Mintz’s article about caring for caregivers
Our member Suzanne Mintz, a Family Caregiver Advocate, shares the link to her Narrative Matters article/podcast in the current issue of Health Affairs: The Double Helix: When The System Fails The Intertwined Needs Of Caregiver And Patient...
Zack Berger from #MedX on uncertainty and decision aids
Regular readers may recall SPM member Zack Berger MD PhD's July post here The pledge of the patient-centered physician. Zack is one of the many SPM members attending the Stanford Medicine X conference this weekend and sends this Saturday night report, cross-posted...
Request: true stories of where patient engagement in the chart made a difference
I'm giving a talk in Vermont next week, to health IT workers, and in talking with the organizers we realized it would be great to give them a vision of WHY we're doing this - some true stories of where patients benefitted from seeing the data in their chart. (By the...
To Be, or Not to Be, a B Corp
Preface (later) by e-Patient Dave - Casey and I were discussing that one of the obstacles impeding changing in medicine is that by law, corporate officers have to serve their shareholders first, i.e. make money before they get into any do-gooder stuff. The subject of...
Jessie Gruman remembrances set for NY, DC
We reported five weeks ago about the passing of Jessie Gruman, one of the greatest figures in our movement, founder of the Center for Advancing Health (CFAH), founding co-editor-in-chief of our Journal of Participatory Medicine, and much more. CFAH has since expanded...
Longitudinal study: engaged (activated) patients do better and cost *less.*
This article was part of the big Health Affairs issue "New Era of Patient Engagement" (Feb 2013) which Ileana Balcu blogged about at the time. I've long been a fan of the Patient Activation Measure, which IÂ wrote about here three years ago in The Patient...
American Heart Association journal announces new Patient Viewpoints
The American Heart Association journal Circulation: Cardiovascular Quality and Outcomes has announced a new Patient or Caregiver Viewpoint section in the journal. Viewpoints will be authored by patients or their caregivers and will discuss the patient's experience of...
OpenNotes in the news: Now 3 million patients – and mental health, too
We've often written here about the OpenNotes study (here's a site search), which documented that when patients can see what their clinicians wrote, the sky doesn't fall; instead, all kinds of good things happen. This is game-changing, even world-changing for how we...
An important moment in our movement (JoPM article): The evolving language of patient engagement
An article of importance to our movement appeared in June, in our Journal of Participatory Medicine. It's an analysis of twelve years of literature about patient engagement, documenting what words people used, what context they appeared in, and (perhaps most...
Researcher seeks patient input: what should a stent decision aid include?
Preface by e-Patient Dave: We have often written here (see posts) about Shared Decision Making, in which patients are engaged in choosing among treatment options. A key method is to give patients a "decision aid" (DA) - a document or video that explains the options,...
Let’s crowdsource what a “good” medical record tool for patients is (and list some products)
Ah, social media. On Facebook a couple of hours ago, Swedish SPM member Sara Riggare posted: Responses were quick and robust: "Web MD has an app that you can download that I use. I find it pretty useful." -Â Mark Burek "That's a sticky question. I tried Caresync ([SPM...