by e-Patient Dave | Oct 2, 2015
Yesterday super-e-patients Regina Holliday, Michael Seres and I spoke on a webcast titled “End-to-End Patient Engagement that Drives Loyalty and Outcomes,” hosted by Liz Boehm of Vocera.com’s @EINHealth Experience Innovation Network. Frankly, we...
by e-Patient Dave | Sep 22, 2015
We’ll update this post as time allows, but: SPM board member (and my fellow kidney cancer patient) Peggy Zuckerman will be on the NBC Nightly News tonight (9/21). Look up the time for your local channel. See also our post this month about her participation at...
by Ileana Balcu | Sep 15, 2015
This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy...
by Casey Quinlan | Sep 9, 2015
A guest post from member Jeffrey Halbstein-Harris – this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout...
by Sarah Greene | Sep 6, 2015
We science-medicine-poetry junkies, along with a sizeable portion of the world’s population, are mourning the death of Oliver Sacks, the neurologist and author who died last Sunday from metastasized melanoma. And as enthusiasts of Dr. Sacks’ catechisms on the soul of...
by e-Patient Dave | Aug 17, 2015
The GetMyHealthData site was taken down at the end of 2022. Updated links here go to the page’s history on Archive.org. Please see my long-overdue post contributing to the @GetOurHealthData movement, on their blog. The more I’ve thought about all the...
by Nancy Finn | Jul 30, 2015
On July 30, 2015, Medicare and Medicaid will celebrate their 50th birthday. In August of 2015 Social Security, celebrates its 80th birthday. Amendments to the Social Security Act (Title XIX) that established guaranteed basic health coverage programs for all elderly,...
by Casey Quinlan | Jul 3, 2015
SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund...
by Nancy Finn | Jul 1, 2015
We have read and heard a lot about the disparities in the cost of care from one hospital or clinic to another. We have read and heard a lot of grumbling about the uneven availability of health care services in this country. Many of us have been outraged to learn that...
by Casey Quinlan | Jun 30, 2015
Our fearless leader, Nick Dawson, has a terrific piece up on RVANews.com about the issues around building a children’s hospital in Richmond, Virginia. An excerpt: 100% of healthcare costs are passed onto the public. Most costs seem to be borne by insurance...
by Nancy Finn | Jun 19, 2015
Every patient wants to be treated with dignity. However, when you are sitting in a doctor’s exam room, holding together a hospital gown that somehow does not want to completely fit around you, or close properly, it is difficult to feel that you have any dignity. ...
by Ileana Balcu | Jun 17, 2015
Matthew S. Katz, MD, is the Medical Director of Radiation Oncology at Lowell General Hospital and a lifetime member of S4PM. He is former Chair of Communications Committee for the American Society for Radiation Oncology (ASTRO) and external advisor for Mayo Clinic’s...
by e-Patient Dave | Jun 15, 2015
Today (11:59pm ET) is the deadline for public comments on the proposed rollback of “Meaningful Use 2” regulations for patient access to their medical records. SPM feels that this is a major issue for enabling patient-provider partnerships; as SPM co-chair...
by Ileana Balcu | Jun 10, 2015
This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid...
by Ileana Balcu | Jun 3, 2015
Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view their lives, and how important it is to have an effective...
by e-Patient Dave | May 28, 2015
A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as...
by e-Patient Dave | May 12, 2015
The advo-cacy of individual SPM members is gaining increasing visibility in the mainstream media, driving home the human impact of policies that help – or don’t help – patients be active contributors to their families’ health and care. This is...
by Ileana Balcu | May 11, 2015
This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid...
by Casey Quinlan | Apr 18, 2015
Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your...
by e-Patient Dave | Apr 18, 2015
It’s often hard for our movement to get major media attention, but it looks like it’s happening: things are heating up on the “empire strikes back” front that we reported on twice this week. Friday’s New York Times, page A30, carried an...
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