by e-Patient Dave | Dec 22, 2011
Update 6:33pm ET: the Storify feed wasn’t working. Should be fixed now. What a rocket ride it’s been for Xeni. Tuesday morning we reported on the BoingBoing co-editor’s unexpected breast cancer diagnosis 12/9, and her odyssey reading her scan data....
by e-Patient Dave | Dec 22, 2011
One of the highlights of 2011 for me was the introduction in May (see our post) of the Engagement Behavior Framework by SPM member (and JoPM founding co-editor) Jesse Gruman. She and her team methodically identified 43 behaviors to be done by an engaged patient or...
by e-Patient Dave | Dec 21, 2011
As you can see in the later comments on Tuesday’s post, @Xeni’s first MRI did not go well. She was given no hint of what the experience would be like – the horrible banging and clanging in the claustrophobic space – and the tech operating the...
by e-Patient Dave | Dec 19, 2011
Important update: I just learned that the full text of these articles is open access! Thanks to the Annals for giving patients access to the text – since it is, after all, about patients see the information. OpenNotes article: “Inviting Patients to Read...
by e-Patient Dave | Dec 12, 2011
Katie Matlack at SoftwareAdvice.com has posted an interactive timeline of EHR history. Interesting to see how things unfolded long ago. Â Note, too, two long-ago pivotal moments: The late 1960s introduction of Larry Weed, MD’s Problem-Oriented Medical Record,...
by Susannah Fox | Dec 8, 2011
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences...
by e-Patient Dave | Dec 7, 2011
As often happens, a Susannah Fox post has led to lingering questions. This time I’ve figured out what I want to say.:-) Last week, in a side note on her World AIDS Day post, she inserted this: … Let’s review the basic math of health services delivery in...
by Susannah Fox | Dec 1, 2011
Mark Senak’s post, “World AIDS Day: The Past Cannot Be the Future,” inspired me to write an epic comment about different perspectives on illness and care delivery, so I adapted and expanded it to share here: I recently read Susan Sontag’s two...
by e-Patient Dave | Nov 30, 2011
We’ve often cited Gary Schwitzer’s Health News Review (@HealthNewsRevu on Twitter)Â as an invaluable e-patient resource. With a structured ten point evaluation process, the site’s many trained reviewers evaluate the reporting of health news. We...
by e-Patient Dave | Nov 28, 2011
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal:Â Interview with Lawrence Weed, MD —Â The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know...
by e-Patient Dave | Nov 27, 2011
Cross-posted from my own site. Last night a dear and inspiring friend breathed her last. Monique Doyle Spencer, metastatic breast cancer patient, died at home as she wished. All knew the end was near. A couple of weeks ago she happily attended her daughter’s...
by e-Patient Dave | Nov 22, 2011
As in 2009 and 2010, this year too we donate our top post at Thanksgiving to the Engage With Grace movement, encouraging people to participate in this very important discussion, at the time of year when we’re most likely to be together with families. Because it...
by Kathleen O'Malley | Nov 21, 2011
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we’re adding it here, four days after the...
by Roni Zeiger | Nov 16, 2011
This post and 5 minute video were published on ABC News yesterday and I want to share them with this community as well. Three months ago, at the age of 40, I had a small bleed in my brain. My story is no more special than any of your stories, but I learned something...
by e-Patient Dave | Nov 10, 2011
To read this post in English, click here. HacÃa tiempo que tenÃamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
by e-Patient Dave | Nov 10, 2011
La esperábamos hacÃa tiempo y por fin ya está aquÃ: la edición española del famoso “Libro Blanco de los e-Pacientes” del Dr. Tom Ferguson: “e-Pacientes: cómo nos pueden ayudar a mejorar la salud.” Haga clic en la imagen de...
by e-Patient Dave | Nov 2, 2011
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction....
by e-Patient Dave | Oct 27, 2011
We’ve sometimes written about doctors as e-patients. (There are a lot!) Here’s the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn’t make sense to him. So he did what...
by John M. Grohol, Psy.D. | Oct 23, 2011
The 60 minutes interview with Steve Jobs’ biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of...
by e-Patient Dave | Oct 20, 2011
It’s wise to make healthy things fun, and even wiser to make them social (as touted by SPM member Phil Baumann RN’s Health Is Social). This week at the Mayo Center for Social Media, guru Lee Aase (@LeeAase) introduced a program that does both: a catchy...
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