by e-Patient Dave | Mar 16, 2012
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s...
by Susannah Fox | Mar 16, 2012
On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild Calhoun and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy...
by Susannah Fox | Mar 9, 2012
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users...
by e-Patient Dave | Feb 12, 2012
It’s funny how things turn out sometimes. Lately I’ve written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn’t you know it, life...
by Susannah Fox | Feb 3, 2012
#whatifhc in #TheWalkingGallery Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into...
by e-Patient Dave | Jan 26, 2012
Edits made in the discussion at bottom, 1/27. Quick post from the media table at today’s Medicare Innovation Summit: Deservedly famed surgeon & author Atul Gawande just put together a bunch of thoughts into a potent summary. Paraphrasing from memory: There...
by e-Patient Dave | Jan 22, 2012
Read to the end… Our man Hugo Campos (see Friday’s post) is becoming a media star! TEDx, then MIT Technology Review, now NPR’s “On The Media”! From SPM co-founder Joe Graedon, of People’s Pharmacy, on the SPM listserv – see...
by e-Patient Dave | Jan 19, 2012
Thanks to Ellen Khalifa at Scrubs and Suits for a nice introduction to SPM, “A Chance to Get behind the Wheel: the Society for Participatory Medicine.” http://bit.ly/wFd9Ep “For decades baby boomers have been associated with movements advocating...
by e-Patient Dave | Jan 18, 2012
My annual physical is this Friday. Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time: 1/17/2012 10:00:06 AM Read Date/Time: 1/18/2012 7:19:08 AM From: OpenNotes, Study...
by e-Patient Dave | Jan 17, 2012
Updated 9:38pm ET – fixed many broken links :-/ I’m spending today (ONLY today, unfortunately) at the MIT Media Lab’s third annual Health & Wellness Innovation event. It’s a two week competition – six teams pursuing some terrific...
by e-Patient Dave | Jan 11, 2012
Regular readers know that last year Jessie Gruman of the Center for Advancing Health was treated for her fourth cancer. (Knock it off, willya??) (Diagnosis post here...
by e-Patient Dave | Jan 7, 2012
I just learned that the organization of SPM president-elect Sarah Krug, Cancer 101, has gotten what I consider a major acknowledgement. On his blog GeekDoctor.blogspot.com, John Halamka announced last month that his wife Kathy was newly diagnosed with breast cancer....
by e-Patient Dave | Jan 7, 2012
We often note here that quality improvement in hospitals seems excruciatingly slow to happen, and engaged patients and families need to keep their eyes wide open, because sometimes a fix doesn’t require being a genius. For instance, see the cartoon at right...
by e-Patient Dave | Dec 31, 2011
It’s fitting that our last post of the year should be about a patient community … winning an award! ACOR’s “KIDNEY-ONC” kidney cancer patient community was recently honored with the “Maily” Listserv Choice award in this, the...
by Kathleen O'Malley | Dec 27, 2011
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable...
by e-Patient Dave | Dec 22, 2011
Update 6:33pm ET: the Storify feed wasn’t working. Should be fixed now. What a rocket ride it’s been for Xeni. Tuesday morning we reported on the BoingBoing co-editor’s unexpected breast cancer diagnosis 12/9, and her odyssey reading her scan data....
by e-Patient Dave | Dec 22, 2011
One of the highlights of 2011 for me was the introduction in May (see our post) of the Engagement Behavior Framework by SPM member (and JoPM founding co-editor) Jesse Gruman. She and her team methodically identified 43 behaviors to be done by an engaged patient or...
by e-Patient Dave | Dec 21, 2011
As you can see in the later comments on Tuesday’s post, @Xeni’s first MRI did not go well. She was given no hint of what the experience would be like – the horrible banging and clanging in the claustrophobic space – and the tech operating the...
by e-Patient Dave | Dec 19, 2011
Important update: I just learned that the full text of these articles is open access! Thanks to the Annals for giving patients access to the text – since it is, after all, about patients see the information. OpenNotes article: “Inviting Patients to Read...
by e-Patient Dave | Dec 12, 2011
Katie Matlack at SoftwareAdvice.com has posted an interactive timeline of EHR history. Interesting to see how things unfolded long ago. Note, too, two long-ago pivotal moments: The late 1960s introduction of Larry Weed, MD’s Problem-Oriented Medical Record,...
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