by e-Patient Dave | Sep 30, 2009
As promised yesterday, here is Amy Romano’s guest post for our series leading up to the Oct. 21 launch of the Journal of Participatory Medicine. Amy is a nurse-midwife and advocate for mother-friendly maternity care. An expert in research analysis, she manages...
by e-Patient Dave | Sep 29, 2009
A guest post by John Sharp of the Cleveland Clinic: If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle of the paper, “How they can help us heal healthcare,” describes...
by e-Patient Dave | Sep 27, 2009
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have...
by e-Patient Dave | Sep 26, 2009
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995...
by Charlie Smith | Sep 17, 2009
Matthew Herper’s post about thalidomide treatment of Myeloma is a good example of how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who get involved to this degree in formulating new treatment...
by John M. Grohol, Psy.D. | Aug 20, 2009
e-Patients.net is an ongoing project of the Society for Participatory Medicine. Participatory medicine is a cooperative model of healthcare that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.)...
by Susannah Fox | Aug 20, 2009
Kevin Kruse posted a video yesterday which includes this line: The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my...
by Charlie Smith | Jul 22, 2009
The nascent field of Participatory Medicine is currently in the “debating and defining” stage. It has been tentatively defined by the steering group of the Journal of Participatory Medicine as: …a cooperative model of health care that encourages...
by Susannah Fox | Jul 8, 2009
The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel...
by Charlie Smith | Jun 16, 2009
Tom Davenport, in a Harvard Business Publishing Blog post, does a nice job of discussing the merging of “Health 2.0”, the aggregate of online communities, wiki’s, bloggers, and tweets, with the role of traditional medical providers. He asks whether,...
by Gilles Frydman | May 18, 2009
As the meme is now firmly accepted, I thought we ought to have another round of definition crowdsourcing. If you use the term please stop here for a minute and let us know what it means to you. I will summarize the responses and use the results to update the wikipedia...
by Sarah Greene | May 11, 2009
My son graduated from college last year and is now in Nepal, visiting schools and writing about rural education under the Maoist regime. He was excited to tell me, when I visited him recently in India, about how a classic book on education, Pedagogy of the Oppressed...
by Gilles Frydman | May 6, 2009
Clinicians, the Government, and many other groups are working hard to improve health care quality, but it’s a team effort. You can improve your care and the care of your loved ones by taking an active role in your health care. Ask questions. Understand your...
by Susannah Fox | Apr 17, 2009
A sneak preview of my remarks at the “Health 2.0 meets Information Therapy” conference appears on the IxCenterBlog: Participatory Democracy, Participatory Medicine. A good discussion of the issues has already begun there and on The Health Care Blog....
by Gilles Frydman | Apr 3, 2009
Amy Marcus, in today’s WSJ, wrote a powerful article about a mom moving medical mountains to help her twin daughters survive a rare and deadly disease. Entitled “A Mom Brokers Treatment for Her Twins’ Fatal Illness. Bucking Scientific Convention,...
by e-Patient Dave | Feb 25, 2009
Healthcare is complex. Worse, our healthcare delivery systems are immensely complex. Sometimes things go wrong. The long and difficult story below was submitted to me by a stalwart former member of my kidney cancer group on ACOR.org. I’m reproducing it here with...
by Alan Greene | Dec 7, 2008
On Friday Senator Tom Daschle announced a campaign to get input from the public about what healthcare reform should look like. “The Transition will host Health Care Community Discussions across the Country over the holidays this December to help his Policy Team...
by e-Patient Dave | Nov 24, 2008
Last month, the Connected Health Symposium at Harvard Medical School saw a first: a full-length case study in participatory medicine, described concurrently by both the patient and his physician. The physician was our own Danny Sands MD, and the patient was our...
by Susannah Fox | Nov 3, 2008
I should have posted this when I posted my slides, but better late than never. Remarks by Susannah Fox of the Pew Research Center’s Internet & American Life Project at the Connected Health symposium in Boston, MA, on October 27, 2008. The Pew Internet...
by Susannah Fox | Oct 30, 2008
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the...
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
Recent Comments