by Gilles Frydman | Oct 15, 2008
“Crowdsourcing: the act of taking a job traditionally performed by a designated agent and outsourcing it to an undefined, generally large group of people in the form of an open call.” Jeff Howe Or in other words Participatory Outsourcing. There is clearly...
by Susannah Fox | Sep 15, 2008
The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt metaphor for the day’s question: How can NIH better communicate with the public? First, I said,...
by Dan Hoch | Jul 16, 2008
Professional medical societies are not quite like the secret society Skull and Bones at Yale University, but they may well look that way to many patients. In most cases, their sole reason for being is to serve their members in a pretty narrowly defined way. The...
by Dan Hoch | Jul 10, 2008
In a piece in the New York Times 7/9/08 (Abuses are Found in Online Sales of Medication) a report (also out Weds) from Columbia University is described. According to the authors, 85% of online sites that sell medications directly to the public do not require a...
by Susannah Fox | Jun 23, 2008
I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the National Institutes of Health we created a participatory talk about participatory medicine: 35 minutes of our findings; 45...
by Gilles Frydman | Jun 17, 2008
Starting in the mid 90s a new paradigm of medicine was born ― first as a grassroots movement and then rapidly evolving into a phenomenon of great interest to public health professionals who started early to study its potential impact on the healthcare system. This...
by Susannah Fox | May 15, 2008
I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big for most people to grasp; creating spaces for participatory medicine...
by e-Patient Dave | May 11, 2008
Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally participatory care team: CT scans revealed I had pancreatic cancer, and it...
by Ileana Balcu | Feb 11, 2017
This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on...
by Eric Bersh | Aug 28, 2023
From shared-decision making, patient-centered care and value-based care to common technology innovations, healthcare players often describe how we aspire healthcare to be in concepts, buzzwords, branding and what has become common lexicon mentioned in conversations...
by Eric Bersh | Apr 27, 2022
Curled up on her hospital gurney but unable to sleep, the middle-aged Latinx female trauma patient sighed, “I am tired of being tired.” Before daybreak, “Rosa” (not her real name) had arrived at work to open her New York restaurant but was interrupted by an intruder...
by Daniel Halpren-Ruder, MD | Oct 25, 2021
We Have Failed The Society for Participatory Medicine was founded in 2009 to transform the culture of care. A few years later, a comprehensive history of the forces that resulted in the creation of the Society was presented here by Millenson: Spock, feminists, and...
by Mohammed Mallouh | Jul 14, 2021
In 2013 the Institute of Medicine published a landmark 436 page consensus report, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. Its summary contains the characteristics of a continuously learning system: Note that the second...
by Danny Sands, MD | Apr 9, 2020
Prologue from Dr. Sands: I trained in clinical informatics because of my belief that we needed to better empower healthcare professionals with information technology so they could take better care of patients, and spent many years creating and implementing these...
by e-Patient Dave | Jan 31, 2019
Sara RIggare, one of the earliest members of our Society, has just received a great honor: Fokus magazine (“Sweden’s Time”) has named her “Swede of the Year” in medicine. In the photo from the award ceremony she seems appropriately...
by e-Patient Dave | Oct 10, 2018
Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....
by e-Patient Dave | Oct 9, 2018
[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....
by Carla Berg | Sep 13, 2017
(part three of three) Lessons from Quebec for Choosing Wisely and Less is More Medicine After a busy few days tracking topics around the researchers and policy-makers at a recent “Preventing Overdiagnosis” conference in Quebec aimed at reducing...
by e-Patient Dave | Aug 7, 2017
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about...
by e-Patient Dave | Aug 3, 2017
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,...
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