by e-Patient Dave | Oct 9, 2018
[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....
by Carla Berg | Sep 13, 2017
(part three of three) Lessons from Quebec for Choosing Wisely and Less is More Medicine After a busy few days tracking topics around the researchers and policy-makers at a recent “Preventing Overdiagnosis” conference in Quebec aimed at reducing...
by e-Patient Dave | Aug 7, 2017
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about...
by e-Patient Dave | Aug 3, 2017
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,...
by Ileana Balcu | Jun 8, 2017
Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...
by Ileana Balcu | May 16, 2017
This is a guest blog post by Allie Davanzo. Allie was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Allie Davanzo is a sophomore Public Health major at The College of New Jersey who hopes to...
by e-Patient Dave | Jan 25, 2017
Today at 3 pm ET, at the Precision Medicine World Conference #PMWC17 in Silicon Valley, a new open collaboration called Precision Medicine For Me was announced, to help patients and clinicians everywhere make the most of the potential of precision medicine. Our...
by David Harlow | Feb 27, 2016
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
by Casey Quinlan | Jun 26, 2015
The Society for Participatory Medicine believes that an effective healthcare system is a collaborative one, where care providers and the patients and families they care for work together toward the best possible health outcomes. The importance of this partnership...
by Casey Quinlan | Feb 5, 2015
SPM member Janet Freeman-Daily, who’s an active voice in the #MedX and #LCSM communities, alerted us to a petition on Change.org that speaks directly to the principles of precision medicine – called for by the President in a White House event attended by...
by Ileana Balcu | Oct 22, 2014
Wikipedia says “Participatory medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as full partners.” That movement gets a big boost in...
by e-Patient Dave | Mar 5, 2014
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
by Nick Dawson | Dec 19, 2013
The Society for Participatory Medicine, through its founders and mission, has a strong belief in the expertise of its patient members – many of whom identify as providers or journalists or have expertise in HIT, health economics and other areas. Patients, often...
by e-Patient Dave | May 30, 2013
See my post about this on Forbes. This is as close as a call to arms as we ever get around here, given how collaborative we are. But this is a case of bad science and/or bad reporting, with clear harm to the participatory medicine movement. Whatever the reason, it...
by Nancy Finn | May 14, 2013
From the lens of a patient who recently experienced major surgery, I now realize how difficult it is to be participatory when you are in pain and taking large doses of pain medication which dulls the senses and puts you in a place where you are not really thinking...
by David Harlow | May 8, 2013
The new darling of the online educational community is Massively Open Online Courses (MOOCs). The example which figures most prominently in the popular imagination is the Khan Academy, though its founder says otherwise, noting that MOOCs are merely online...
by Susannah Fox | Oct 5, 2012
(A cross-post from susannahfox.com) I had the great honor of being part of the first Medicine X conference at Stanford University last weekend. I presented a sneak preview of new survey results collected by the Pew Internet Project and the California HealthCare...
by Joe Graedon | Sep 18, 2012
Following up on Susannah Fox’s superb summary of Medicine 2.0 Day One, I would like to offer some overview and comments about day two. This was my first Medicine 2.0 meeting. I had heard a lot about Gunther Eysenbach, MD, MPH, and his merry band of...
by Susannah Fox | Sep 16, 2012
My schedule only allowed me to attend Day One of the fantastically rich Medicine 2.0 Congress being held this weekend in Boston. I thought I’d share my impressions and notes in case they spark inspiration for other people, as each presenter and hallway...
by Alan Greene | Jun 5, 2012
At Health Datapalooza today in Washington, DC, the Society for Participatory Medicine announced the live beta launch of our Seal Program. The SPM Seal will be awarded to clinicians and to patients who make four simple, achievable, but powerful participatory...
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