by Susannah Fox | Aug 31, 2011
In 2008, I asked for this community’s help in choosing which sessions to attend at the Chronic Disease Care conference sponsored by the California HealthCare Foundation. I loved the input I got and wrote 3 posts on what I learned about spreading improvement in...
by e-Patient Dave | Jan 28, 2011
Update 1/29: in a comment, Gilles Frydman pointed out that Newsweek’s Sharon Begley wrote this article almost two months before the New Yorker piece appeared – and the editors held the article, apparently due to pressure from a pharma advertiser whose...
by Susannah Fox | Jul 13, 2010
Update: The NLM released new widgets on July 14, along with a redesigned MedlinePlus site. (Read @eagledawg’s take on these new tools, as well as her response to this post.) Speaking to the senior staff of the National Library of Medicine last week was like...
by e-Patient Dave | Mar 26, 2010
Last week we posted a request from Dr. Bertalan Meskó for video messages from e-patients to his “Medicine 2.0” course. Here’s my submission. (This is my first “vlog” (video blog) so the quality’s not great – like everything...
by e-Patient Dave | Dec 5, 2009
Some people think e-patient ideas are new. They’re not. I’d like to give credit to a noble antecedent, and ask for your support. Shortly after I discovered this blog (February ’08) I recognized two strong precedents from earlier in my life:...
by e-Patient Dave | Nov 23, 2009
Understanding medical research, at some level, is a fundamental e-patient skill. As we start digging for reliable new information, we have to learn to separate quality from questionable. (If you think medical journals are academically pure, you’ve got learning...
by Susannah Fox | Oct 14, 2009
Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was...
by e-Patient Dave | Sep 1, 2009
I can barely contain my happiness (oh heck, I’ll let it spill) at this: participatory patients and physicians creating educational content, using free internet software tools, and posting it for people to read (free) around the world. I’m a member of the...
by Jon Lebkowsky | Jun 14, 2009
Physician Pauline Chen writes about “Medicine in the Age of Twitter” for the New York Times. The article suggests the need for our upcoming peer-reviewed Journal of Participatory Medicine:…a quick scan through peer-reviewed journals reveals only a...
by Gilles Frydman | Apr 20, 2009
Neither health professionals nor patients can do it alone. Let’s make no mistake: We are here to participate and to help! e-Patient Dave original story of the health data transfer from his hospital EHR to Google Health PHR is remarkable in many ways and shows...
by Eric Bersh | May 29, 2025
Editor’s Note: This is the second part of Josh Rubin’s post. The first was published on May 23, 2025 Building Upon a Powerful Foundation of Patient Empowerment In part 1 of this post I paraphrased Dr. Casey Means (referencing Robert F. Kennedy, Jr.), noting that...
by Eric Bersh | May 23, 2025
Editor’s Note: This post (in two parts) builds upon email correspondence the author sent to Robert F. Kennedy, Jr. and key members of his Make America Health Again (MAHA) team beginning in November 2024. It aims to illuminate alignment between three principles (and...
by Mary Hennings | Dec 30, 2024
The news cycle is moving on, but the killing of Brian Thompson was awful, no matter how one feels about the shortcomings of the American health care system. In a recent New York Times opinion piece, Andrew Witty, president of the UnitedHealth Group, wrote that no one...
by Mary Hennings | Aug 7, 2024
Over the past several months, SPM’s board has engaged in a planning effort, as it approaches the fifteenth anniversary of its creation. Our goal is to assess the state of the Participatory Medicine movement and discern where SPM could have its greatest impact in...
by Danny Sands, MD | May 6, 2024
I care for a diverse population of individuals in my primary care practice. It’s hard enough to motivate behavior change in people who have little motivation, but it’s even more challenging when it’s hard to connect with them because of cultural disparities....
by e-Patient Dave | Mar 29, 2024
Guest post by long-time SPM member Tracy Zervakis. Participatory medicine involves professionals and patients working together to get healthcare done. When a treatment plan is agreed and chosen, the best outcome obviously requires carrying out the plan – but...
by Eric Bersh | Mar 28, 2024
I have a confession to make: I’m not always an effective advocate for my own care. It’s probably helpful for me to put this into context. I have been working in and around healthcare organizations for more than 25 years. I’m a researcher by trade, and worked with...
by Eric Bersh | Jan 17, 2024
Our goal for the Society for Participatory Medicine in 2023 was to expand awareness of participatory medicine ([PM)] and SPM post-Covid and build new insights into the value of PM. We developed two curriculum modules, one on participatory medicine and the other on...
by Eric Bersh | Aug 8, 2023
Editor’s note: In her new book, Communicating Through a Pandemic: A Chronicle of Experiences, Lessons Learned, and a Vision for the Future, Amelia Burke-Garcia, PhD, MA explores the many and varied roles that communication has played over the course of this pandemic,...
by Eric Bersh | Jul 12, 2023
Editor’s note: Ibrahim Rashid contracted Long COVID more than two years ago. The experience is propelling his patient advocacy and entrepreneurship, as co-founder of the digital health company Strong Haulers. In this excerpt from his new book, Strong Hauler: Learning...
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
Recent Comments