by Susannah Fox | Jan 31, 2010
…The remaining 95% of “patients” out there are not motivated to become informed, or invest the time/energy/money in using any of these tools. These are the folks that know that fast food isn’t healthy, but are just too tired to choose differently. Some (emphasis on...
by e-Patient Dave | Jan 16, 2010
This is a guest post by Lucien Engelen (Dutch Twitter friend @Zorg20), who was featured in October’s The internet is changing healthcare – video from Reshape09. Here, he takes it to the next step, moving from health 2.0 to “health 2.010”. I love it!...
by Susannah Fox | Jan 14, 2010
Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today’s must-read article, Patients demand: ‘Give us our damned data’. An e-patients all-star team is quoted in the story: Jen McCabe,...
by e-Patient Dave | Jan 2, 2010
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
by Cheryl Greene | Dec 31, 2009
Prolog: Cheryl said she wasn’t sure whether this post belonged on the e-patient blog. It sure does: When lives are prolonged by medical success, we get to do all kinds of things we wouldn’t have. It also belongs here because this short little piece...
by e-Patient Dave | Dec 15, 2009
Yesterday I attended “How Access to Information Can Empower Patients and their Caregivers,” conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no...
by Gilles Frydman | Dec 12, 2009
I started writing this post while watching a livestream of the LeWeb09 conference in Paris and finished it while watching a livestream of TEDxSV. Open Streams are of many kinds and shapes. They are completely changing how we consume information, news &...
by Susannah Fox | Nov 20, 2009
A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your...
by e-Patient Dave | Nov 15, 2009
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added)...
by Gilles Frydman | Nov 12, 2009
The FDA is holding a public hearing on the “Promotion of FDA-Regulated Medical Products Using the Internet and Social Media Tools.” There is a tremendous amount of buzz on Twitter and blogs about this meeting which will hear 60 speakers, some more than...
by e-Patient Dave | Oct 15, 2009
Marcia Angell MD is a well-known, respected physician, long-time editor of NEJM. So it was a bit of a shock today when Amy Romano, blogger for Lamaze International, sent me this quote: It is simply no longer possible to believe much of the clinical research that is...
by e-Patient Dave | Oct 5, 2009
“While other industries take as their focus such shallow concerns as the making of money, the health care profession prides itself on dealing with matters of life and death. But that’s not the only thing distinguishing health care from other industries: it is...
by Susannah Fox | Sep 17, 2009
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help....
by e-Patient Dave | Sep 12, 2009
We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he...
by Susannah Fox | Aug 18, 2009
Federal agencies can, and should, be the first responders to health questions. Social media can help. That’s my summary of presentations from last week’s National Conference on Health Communication, Marketing and Media conference, where I had the sense,...
by e-Patient Dave | Aug 14, 2009
Important update: it turns out the writer did get it right, and this was an editing error at the Boston Globe. See my comment August 17. —– As empowered, engaged patients we have a responsibility to evaluate the articles we read. A case in point is this...
by e-Patient Dave | Aug 10, 2009
Good piece on NPR this morning about what a KQED correspondent found when she went to Canada and talked to citizens and doctors about their experience of wait times. Click to go to their site and listen. One might ask, what does this have to do with patient...
by e-Patient Dave | Jul 10, 2009
I am sick of hearing politicians and money-making parties talk about savings projections “over ten years.” It’s STUPID. We’re stupid if we listen. Nothing (and I mean nothing) happens as projected ten years ago, not even five. It’s...
by Gilles Frydman | Jun 29, 2009
Goodhart’s law – named after a former chief economist of the Bank of England – says that whatever social or economic indicator or other surrogate measure you adopt as a financial target ceases to be a relevant target once you have adopted it because...
by Gilles Frydman | Jun 22, 2009
Dedication: This post is dedicated to Regina Holliday and to the memory of her husband, Frederick Allen Holliday, who passed away on June 17. Regina’s story has energized many of us to create the Declaration of Health Data Rights we are asking you to endorse on...
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