by e-Patient Dave | Jul 10, 2009
I am sick of hearing politicians and money-making parties talk about savings projections “over ten years.” It’s STUPID. We’re stupid if we listen. Nothing (and I mean nothing) happens as projected ten years ago, not even five. It’s...
by Gilles Frydman | Jun 29, 2009
Goodhart’s law – named after a former chief economist of the Bank of England – says that whatever social or economic indicator or other surrogate measure you adopt as a financial target ceases to be a relevant target once you have adopted it because...
by Gilles Frydman | Jun 22, 2009
Dedication: This post is dedicated to Regina Holliday and to the memory of her husband, Frederick Allen Holliday, who passed away on June 17. Regina’s story has energized many of us to create the Declaration of Health Data Rights we are asking you to endorse on...
by e-Patient Dave | Jun 19, 2009
This is not going to be easy to absorb, if you really let it sink in. My wife’s a veterinarian, and we sometimes compare notes. So this headline caught my attention. Excerpt from the article: Economic Euthanasia On the Rise Euthanasia can be the last act of love...
by e-Patient Dave | Jun 19, 2009
Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was...
by e-Patient Dave | Jun 10, 2009
This item from ABC News nearly brought tears to my eyes. The first signs that something was wrong with 11-year-old Connor Teare came when he was a toddler. His muscles were growing increasingly rigid and becoming more difficult to move. He went from leg braces to a...
by Gilles Frydman | Jun 7, 2009
In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a...
by Gilles Frydman | Jun 4, 2009
“Statistics should be the intellectual sidewalks of a society, and people should be able to build businesses and operate on the side of them” This quote from Hans Rosling is part of a speech where he presented the following: Database-hugging disorder (Dbhd): A...
by e-Patient Dave | May 25, 2009
This is a special occasion for me, a guest post by Dr. Louise Glaser. Louise is a pediatrician in the Kaiser Permanente system, where among other things she’s Chief of Leadership and Communication Development in the Sacramento area. I met her a year ago at the annual...
by e-Patient Dave | May 13, 2009
John Halamka’s blog has a new post today announcing that the National Library Medicine has mapped 93% of his hospital’s “problem list” codes to the SNOMED CT set of clinical data codes that’s widely used. For more info on data formats see...
by e-Patient Dave | May 13, 2009
Precursor posts: The “meaningful use” debate (my thoughts); the Markle Foundation’s work on the subject Thanks to Josh Seidman of the Information Therapy Blog for steering me to the “meaningful use” work that’s been done by the...
by Susannah Fox | May 5, 2009
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds...
by Gilles Frydman | Apr 30, 2009
As you have seen in my last post I have really enjoyed the conference. Exhilarating is the best way to describe the feeling. But I am a white male in his early 50s. That makes me, statistically, the equivalent of the majority of attendees at the conference. And so I...
by e-Patient Dave | Apr 17, 2009
I never knew “Doc Tom” Ferguson; he died three years ago this week, April 14, 2006. That was nine months before my diagnosis and 21 months before I discovered the movement that he founded. That team, with later additions, is here. Tom, I think of you...
by John M. Grohol, Psy.D. | Apr 14, 2009
It is absolutely amazing to watch the unfolding saga the moment a real patient enters real data into Google Health from his hospital’s medical records. The way the marketing folks tell us, this is a seamless exercise that gets you up and running on personal...
by John M. Grohol, Psy.D. | Apr 13, 2009
The Boston Globe takes note of the morass that is Google Health when connecting it to your medical records, as recounted earlier by our own e-Patient Dave here on e-patients.net.
by e-Patient Dave | Apr 12, 2009
Do you know what’s in your medical record? Does it contain mistakes or omissions? The extraordinary response to our April 1 post about data transfer from PatientSite to Google Health (86 comments so far) made us realize that the time has come for patients to...
by e-Patient Dave | Apr 9, 2009
I’ve been thinking a lot about where to take the discussion that’s exploded on my post about moving my data from PatientSite into Google Health. I’m hardly an IT guru, but as I said, I do work with data at my day job. And before we proceed,...
by John M. Grohol, Psy.D. | Apr 6, 2009
I sometimes wonder whether we complicate things that are pretty simple, by assigning more labels and new terms to things that have perfectly good labels already. For instance, I once thought I knew what “information therapy” meant. It meant a doctor or...
by e-Patient Dave | Apr 1, 2009
This is a complex post, so don’t jump to any conclusions. Two weeks ago (gad, was it that long?) I asked you to think about something for a few days: Imagine that for all your life, and your parents’ lives, your money had been managed by other people who had extensive...
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