by Gilles Frydman | Mar 17, 2009
In our continuous series about undeclared conflicts of interest comes a great blog post from the Wall Street Journal. In it JAMA’s editor in chief, Catherine DeAngelis, M.D, interviewed about a certain Jonathan Leo, had these choice words to describe him:...
by e-Patient Dave | Mar 15, 2009
We’ve been talking here (especially about Medpedia) about the vital question of what constitutes reliable information. This morning I ran across a bit of idiocy on YouTube (you’re shocked, I know) regarding my own type of cancer, titled “Two New...
by e-Patient Dave | Mar 12, 2009
We’ve been known to have our minds blown, but this one started as an eye-popper and got better. A friend writes: “Even the DoD is getting in the act: Patients urged to take charge of their care.” But holy cow, there was a LOT more behind that...
by Susannah Fox | Feb 28, 2009
Today is Rare Disease Day 2009. Join us in recognizing the reality of rare disorders and celebrating the beauty in the eyes of children living with rare disease and those who have lost their lives.
by e-Patient Dave | Feb 27, 2009
Update January 2011: Be sure to read the comments, which have links to many valuable resources. This item today, from MedPage, underscores the importance of having our eyes open about the human frailties in the research process that our lives can depend on. ORLANDO,...
by e-Patient Dave | Feb 14, 2009
Cross-posted from my own blog, and then some E-patients, listen up. We have work to do, work we can do. For the past year I’ve been learning what I can about the American healthcare system. I started this not as an “injured” patient but as someone...
by Susannah Fox | Feb 4, 2009
Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on...
by Susannah Fox | Feb 2, 2009
Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.
by Christine Gray | Jan 13, 2009
My quest for a second qualified opinion on an abnormal mammogram (microcalcifications) began in October, Breast Cancer Awareness Month. Two days before the end of the year, a sharp surgical resident put an end to the spin. The solution was simple – and not high tech....
by e-Patient Dave | Jan 9, 2009
I don’t get surprised these days as easily as I used to before I got “e.” But something popped my eyes open last weekend, and I dug into it. It goes to the heart of where the power is, in the doctor-patient relationship. But not just the power – the...
by Susannah Fox | Dec 29, 2008
This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured...
by Christine Gray | Dec 27, 2008
Are women dying of cancer in the same way they die of heart disease, because physicians trivialize their complaints and they are powerless to get second opinions? How many decades has it taken for cardiologists, practitioners at the apex of medicine, to acknowledge...
by Susannah Fox | Dec 17, 2008
NIH is sponsoring a summit this week, The Science of Eliminating Health Disparities. I heard about it from Mary Brophy Marcus’s article in USA Today and I found this press release online, but I haven’t seen other coverage of the event. If you spot stories...
by Susannah Fox | Dec 11, 2008
Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and...
by Susannah Fox | Dec 2, 2008
Just before Thanksgiving, Microsoft released a study entitled, “Cyberchondria: Studies of the Escalation of Medical Concerns in Web Search.” Ryen White and Eric Horvitz took advantage of a data set that few people have access to (log files from...
by Susannah Fox | Nov 25, 2008
Josh Seidman asks a very good question that goes toward our discussion of spreading improvement and the digital divide, “If [targeted] interventions… have been shown to have an enormous impact on the health of these populations, maybe Ix and related...
by Gilles Frydman | Nov 18, 2008
Everyone knows the supposed origin of the phrase. But as you can see here it goes back to Medicine: “Look at the dozens of operations by me this year without a death,” says the operator. His less enthusiastic neighbor thinks of the proverbial kinds of...
by Gilles Frydman | Nov 12, 2008
Information Silo: An information silo is a management system incapable of reciprocal operation with other, related management systems… “Information silo” is a pejorative expression that is useful for describing the absence of operational reciprocity....
by Susannah Fox | Nov 11, 2008
The California HealthCare Foundation’s Chronic Disease Care conference was so packed with great panels that I needed help choosing my targets. Here is the first in a series of posts about this event. Spreading Improvement: After the Innovators/Early Adopters...
by Christine Gray | Nov 6, 2008
In October I recounted how my daughter was put through a spin cycle of referrals and medical misdiagnosis that nearly got her killed. The lump on her forearm that looked like a cyst was instead a deadly cancer. The nightmare began at the local radiology practice,...
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