Search all of the Society for Participatory Medicine website:Search

Overtreatment – sometimes against our will

Here’s an unpleasant aspect of patient empowerment: we need to be aware that sometimes our providers will heap treatments on us that aren’t necessary – and, sometimes, treatments we’ve specifically said we don’t want. Paul Grundy MD,...

Monique tells why she doesn’t see herself as “e”

I’m delighted to present a guest post from cancer patient Monique Doyle Spencer, whose husband found the henna relief for hand-foot syndrome we mentioned yesterday. She is a stitch. To me she’s about as empowered as they get, but she says she’s...

Medpedia – where are the patients??

Medpedia has gotten a lot of publicity in the past week. Considering that Wikipedia has disavowed* usefulness for patients, Medpedia sounds like a potentially great idea. * See Jon’s correction in Comments. –EPD But when I saw their home page it literally...

Steal these slides

Click images to view full size originals. Last weekend I stumbled across the “attic” of Tom Ferguson MD, who was the “George Washington of patient empowerment,” as CNN put it this month, citing his work since 1975 to create a world of freedom...

Social DNA at 23andme: who owns your genome?

23andMe is a new personal genomics system that will have social features. Once your DNA is analyzed, you’ll be able to compare it with others’. People will be able to find each others by allele (genetic variation). Unfortunately, you have to shell out $999...
Flashback to 2001

Flashback to 2001

Bowing to popular demand (OK, one person) I uploaded a PDF of the 2001 press release from the American Medical Association which suggested that Americans make a New Year’s resolution to “trust your physician, not a chat room” since the information found online puts...

Wikis: Cautionary Tale 2.0

Everybody is talking about social networks, collective intelligence, wisdom of crowds, smartmobs, User Generated Content and other “2.0” terms. It almost sounds like the only recipe to create the next big idea in the medical internet is to use a few of...

Donate