by Susannah Fox | Nov 25, 2008
Josh Seidman asks a very good question that goes toward our discussion of spreading improvement and the digital divide, “If [targeted] interventions… have been shown to have an enormous impact on the health of these populations, maybe Ix and related...
by Gilles Frydman | Nov 18, 2008
Everyone knows the supposed origin of the phrase. But as you can see here it goes back to Medicine: “Look at the dozens of operations by me this year without a death,” says the operator. His less enthusiastic neighbor thinks of the proverbial kinds of...
by Gilles Frydman | Nov 12, 2008
Information Silo: An information silo is a management system incapable of reciprocal operation with other, related management systems… “Information silo” is a pejorative expression that is useful for describing the absence of operational reciprocity....
by Susannah Fox | Nov 11, 2008
The California HealthCare Foundation’s Chronic Disease Care conference was so packed with great panels that I needed help choosing my targets. Here is the first in a series of posts about this event. Spreading Improvement: After the Innovators/Early Adopters...
by Christine Gray | Nov 6, 2008
In October I recounted how my daughter was put through a spin cycle of referrals and medical misdiagnosis that nearly got her killed. The lump on her forearm that looked like a cyst was instead a deadly cancer. The nightmare began at the local radiology practice,...
by e-Patient Dave | Oct 19, 2008
Here’s an unpleasant aspect of patient empowerment: we need to be aware that sometimes our providers will heap treatments on us that aren’t necessary – and, sometimes, treatments we’ve specifically said we don’t want. Paul Grundy MD,...
by Susannah Fox | Oct 3, 2008
Christine Gray’s comments on the New York Times open thread merit a separate post (updated on 10/7/2008): Five years ago, when many pediatric hospitals were unaware of or unwilling to acknowledge the capacities of online medical support groups, my...
by e-Patient Dave | Aug 7, 2008
I’m delighted to present a guest post from cancer patient Monique Doyle Spencer, whose husband found the henna relief for hand-foot syndrome we mentioned yesterday. She is a stitch. To me she’s about as empowered as they get, but she says she’s...
by e-Patient Dave | Jul 28, 2008
Medpedia has gotten a lot of publicity in the past week. Considering that Wikipedia has disavowed* usefulness for patients, Medpedia sounds like a potentially great idea. * See Jon’s correction in Comments. –EPD But when I saw their home page it literally...
by e-Patient Dave | Jul 15, 2008
Click images to view full size originals. Last weekend I stumbled across the “attic” of Tom Ferguson MD, who was the “George Washington of patient empowerment,” as CNN put it this month, citing his work since 1975 to create a world of freedom...
by e-Patient Dave | Jul 3, 2008
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others:This week, as we reflect on American heroes, we’re saluting a few “patient...
by Jon Lebkowsky | Mar 27, 2008
23andMe is a new personal genomics system that will have social features. Once your DNA is analyzed, you’ll be able to compare it with others’. People will be able to find each others by allele (genetic variation). Unfortunately, you have to shell out $999...
by e-Patient Dave | Mar 18, 2008
Corrected 3/23/08: The hospital does have online patient records, though they don’t include CT/MRI or mammogram results. See link and details below. This one strikes close to home, landing a year after removal of my own cancerous kidney … plus, a year...
by Susannah Fox | Mar 12, 2008
Bowing to popular demand (OK, one person) I uploaded a PDF of the 2001 press release from the American Medical Association which suggested that Americans make a New Year’s resolution to “trust your physician, not a chat room” since the information found online puts...
by Gilles Frydman | Jan 31, 2008
Everybody is talking about social networks, collective intelligence, wisdom of crowds, smartmobs, User Generated Content and other “2.0” terms. It almost sounds like the only recipe to create the next big idea in the medical internet is to use a few of...
by Gilles Frydman | Jun 6, 2007
This post is available here
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