by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by Susannah Fox | May 24, 2010
The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC. The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions. Apps for America Contest Winners – Clay...
by e-Patient Dave | May 22, 2010
Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at...
by Susannah Fox | May 21, 2010
Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
by Susannah Fox | May 11, 2010
As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to...
by e-Patient Dave | May 8, 2010
This is an essay I (mostly) wrote April 28 on Vince Kuraitis’s e-Care Management Blog, part of his series with David Kibbe MD about the Federal EMR incentives, titled “Is HITECH Working?” The series is, in my opinion, the most useful update...
by Susannah Fox | May 5, 2010
I am struck, once again, by the power of data and the power of one. Carlos Rizo, Chief Imagineer of the Health Strategy Innovation Cell, posted this very intriguing tweet on May 2: The power of open data: To find problems in complicated environments, and possibly even...
by Susannah Fox | May 4, 2010
Adam Bosworth of Keas delivered quite a lecture yesterday at the Alliance for Healthcare Foundation. He talks about how Americans don’t really like data (but they need it), why “frugal innovation” is the best path for start-ups, how e-Patient Dave...
by e-Patient Dave | Apr 28, 2010
The e-Caremanagement blog has released my post that we mentioned last week: “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation. It’s part 5 of their excellent series (really, excellent) “Is HITECH working?” As...
by e-Patient Dave | Apr 25, 2010
Actor Dennis Quaid has produced an outstanding, informative, empowering and motivating CME* program, “Chasing Zero: Winning the War on Healthcare Harm.” It’s on the Discovery Channel. Part 1 is here. This is the best-produced material I’ve seen...
by e-Patient Dave | Apr 22, 2010
In my previous post I noted that Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* After a full year of increasing tensions, claims, and counterclaims, reading these posts has given me hope that it’s all panned out into...
by e-Patient Dave | Apr 15, 2010
We’ve talked in the past about “d-patients” – doctors who become e-patients themselves. Our own founder Tom Ferguson MD was one. “D-patients” are a special case that proves, once and for all, that being an e-patient has nothing to...
by e-Patient Dave | Apr 10, 2010
I was talking to Mom (age 80) the other night, and she mentioned a document she updates regularly. She prints a fresh copy to take to every doctor visit, so they’ll always have it up to date and won’t have to go digging. We’ve never discussed topics...
by Gilles Frydman | Mar 18, 2010
Another guest post from Lisa Gualtieri, PhD, ScM, following her much-commented earlier post. Lisa is Adjunct Clinical Professor in the Health Communication Program at Tufts University School of Medicine. Lisa teaches Online Consumer Health and Web Strategies for...
by e-Patient Dave | Mar 16, 2010
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary...
by Gilles Frydman | Mar 15, 2010
Guest post from Lisa Gualtieri, PhD, ScM, Adjunct Clinical Professor in the Health Communication Program at Tufts University School of Medicine. Lisa teaches Online Consumer Health and Web Strategies for Health Communication. A social media user herself, Lisa...
by Susannah Fox | Mar 1, 2010
Erin Turner recently wrote: When I arrived at the Mayo Clinic in Rochester, Minnesota a few weeks ago, I was asked: “Who referred you to us?” My answer was not traditional: “Twitter.” (Read her full story on the SpectrumScience blog. And take...
by e-Patient Dave | Feb 24, 2010
As I’ve noted recently, this Thursday I’m on a stakeholder panel at a meeting of the Adoption/Certification Workgroup, which is part of the Federal Health IT Policy Committee. As noted in my previous post, this is a busy day, and each of us gets only 5-7...
by e-Patient Dave | Feb 21, 2010
One profound shift in healthcare enabled by the internet is the Web’s ability to be a common platform for huge numbers of low-volume diseases. This is the “long tail” effect that makes Amazon and eBay a success, selling vast numbers of items you...
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