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Pandas, Lobsters, and Health Care

Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of...

Patient Communities… at Walgreens?

In May, I spoke at the Chronic Care and Prevention Congress about my most recent report, “Chronic Disease and the Internet.” I talked about the social life of health information and the internet’s power to connect people with information and with...

“Over My Dead Body”: Why System Usability Matters

It’s widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said “Over my...

Why a Patient 2.0 Panel at the Health 2.0 DC conference?

This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...

Health 2.0 DC: Passion and Execution at Scale

I think conferences are deeply affected by the spirit of their host city.  San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and...

Great news from “Mama Lion” Engelman and daughter

Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...

e-Patient Judy Feder’s time runs out

As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...

Gov 2.0 Expo: Health Geek Guide

The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC.  The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions. Apps for America Contest Winners – Clay...

A New Conversation About Health Privacy: Who’s In?

Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness...

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