by e-Patient Dave | Jul 20, 2010
Participate in a public survey here at the OpenNotes project website: what do you think will happen when notes are made visible to patients? Five weeks ago we wrote about the start of the OpenNotes project, funded by Robert Wood Johnson Pioneer Portfolio. The...
by Susannah Fox | Jul 15, 2010
Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of...
by e-Patient Dave | Jul 2, 2010
This week the Department of Health & Human Services (HHS) introduced Healthcare.gov, a consumer information website mandated by the Affordable Care Act (aka the health reform bill). A video of the introduction meeting is here. The site is fabulous; HHS Chief...
by e-Patient Dave | Jun 30, 2010
Earlier this month I wrote that the OpenNotes project had kicked off. It’s important – if you haven’t read about it, please click that link. My primary physician and I are participating, but candidly I didn’t expect to get much out of it: as I...
by e-Patient Dave | Jun 27, 2010
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.)Â Not only are statistics often misinterpreted; even when they’re correctly understood,...
by e-Patient Dave | Jun 21, 2010
Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He’s a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went...
by Susannah Fox | Jun 17, 2010
In May, I spoke at the Chronic Care and Prevention Congress about my most recent report, “Chronic Disease and the Internet.” I talked about the social life of health information and the internet’s power to connect people with information and with...
by e-Patient Dave | Jun 15, 2010
It’s bonanza time for people intrigued with the OpenNotes project, which we mentioned Saturday. While looking for something else tonight, I ran across this, about OpenNotes, from December: “Concern that sharing information with patients may cause sustained...
by e-Patient Dave | Jun 14, 2010
It’s widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said “Over my...
by e-Patient Dave | Jun 13, 2010
Todd Park is the “entrepreneur in residence” (aka Chief Technical Officer) for the US Department of Health & Human Services (HHS). He’s an awesome (and I mean it) speaker, articulate and inspiring. Watch his 9:39 talk at O’Reilly’s...
by e-Patient Dave | Jun 12, 2010
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar – Kramer...
by Gilles Frydman | Jun 9, 2010
This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...
by Susannah Fox | Jun 8, 2010
I think conferences are deeply affected by the spirit of their host city. San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and...
by e-Patient Dave | Jun 7, 2010
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...
by e-Patient Dave | Jun 6, 2010
A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by Susannah Fox | May 24, 2010
The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC. The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions. Apps for America Contest Winners – Clay...
by e-Patient Dave | May 22, 2010
Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at...
by Susannah Fox | May 21, 2010
Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
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