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PCORI Workshop post 1: Kelly Young (@RAWarrior)

by | Oct 30, 2012

As noted in today’s earlier post, we’re starting a series of posts by SPM members who participated in last weekend’s PCORI workshop. Kelly Young (@RAWarrior) is one of the smartest e-patients I’ve ever seen anywhere. Aside from her technical...
Building Us Up, Not Tearing Us Down

Building Us Up, Not Tearing Us Down

by | Sep 27, 2022

“Lack of effort and persistence”  Those words cut like a knife, leaving a deeper wound than any facet of illness my daughter has faced. A provider used those words to describe my 19-year-old daughter Sara, who has lived her entire life with chronic complex medical...
Creating Your Own Self-Advocacy Style

Creating Your Own Self-Advocacy Style

by | May 5, 2022

We cannot always choose what happens to us in life, but we can choose how we respond and handle it. Take for example, the time that I had a physical examination with my relatively new primary care physician. They did blood work and I received a report, along with a...

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