by e-Patient Dave | Mar 31, 2012
When Medicine Really Gets Personal:Â The DIY Clinical Trial – Health Blog – WSJ http://blogs.wsj.com/health/2012/03/30/when-medicine-really-gets-personal-the-diy-clinical-trial/
by Jon Lebkowsky | Mar 29, 2012
Consumer Reports notes that medical devices are rarely tested to determine whether they’re safe. Consumers Union’s Safe Patient Project is gathering stories from patients who’ve had a problem with an implant or a medical device. The Project is...
by Kathleen O'Malley | Mar 28, 2012
Guest blogger, e-patient and SPM member Nancy Finn takes on the tough topic of how to reduce the cost of health care delivery. With all the talk this week about Obamacare and whether or not the Supreme Court will declare the law constitutional, partially...
by e-Patient Dave | Mar 27, 2012
SPM member Eve Harris, on her “Healthy Piece of My Mind” blog, has a potent post on yesterday’s Supreme Court decision about the BRCA1 and BRCA2 patents held by a private company. The patents have restricted patients’ and families’ access...
by e-Patient Dave | Mar 26, 2012
Since November I’ve been blogging on my personal site about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system...
by e-Patient Dave | Mar 24, 2012
In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what’s going on, and how this replaced what he’d lost when he gave up doing teaching rounds. Every “why...
by e-Patient Dave | Mar 23, 2012
It’s terrific that so many members of the Society for Participatory Medicine are contributing guest posts that share their e-patient story or how they came to know and care about participatory medicine. This one, by Akiva Zablocki (@iPatchMan), is extraordinary,...
by e-Patient Dave | Mar 23, 2012
The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medical records. Their wizard Deven McGraw is widely recognized as one of the best authorities anywhere on HIPAA –...
by e-Patient Dave | Mar 21, 2012
Update 3/23: here’s the transcript of the event. Remember December’s post about the #firstMRI idea, to help poor unsuspecting patients prepare for the “monkeys banging on garbage cans” experience? It’s a project now! Join us for...
by e-Patient Dave | Mar 20, 2012
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading “Today’s update.” As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them...
by Susannah Fox | Mar 18, 2012
The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah....
by John M. Grohol, Psy.D. | Mar 17, 2012
I’m a little confused… I’m not sure where the U.S. Constitution guaranteed the government’s right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government’s right to...
by e-Patient Dave | Mar 16, 2012
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his...
by e-Patient Dave | Mar 16, 2012
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s...
by Kathleen O'Malley | Mar 16, 2012
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her...
by Susannah Fox | Mar 16, 2012
On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild Calhoun and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy...
by e-Patient Dave | Mar 15, 2012
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into...
by e-Patient Dave | Mar 14, 2012
Twitter friend @Scanman submitted this one. Robert Krause was diagnosed with diabetes in 1926, at age 5, shortly after insulin was introduced. What a story of a patient who was engaged in his care – starting at age 6. He died this month, just before turning 91....
by e-Patient Dave | Mar 14, 2012
We often hear lately that physicians don’t KNOW what things cost, and are thus disempowered from helping patients control costs. This item arrived today from The Medical Professionalism Blog, the blog of the ABIMF, the American Board of Internal Medicine...
by Kathleen O'Malley | Mar 13, 2012
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15....
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