by e-Patient Dave | Feb 25, 2014
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University’s Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post...
by e-Patient Dave | Feb 11, 2014
Edited an hour later – I had the wrong French speaking e-patient! On Facebook today Christine Bienvenu @TinaBurger posted this news on my timeline: … with the help of a Swiss colleague who works at the Geneva University Hospitals we were able to get the...
by e-Patient Dave | Feb 1, 2014
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Jan 30, 2014
Prolog by e-Patient Dave: “Patients Included” was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes – as in this...
by e-Patient Dave | Jan 25, 2014
Here’s a new “must read” for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my...
by e-Patient Dave | Jan 21, 2014
For U.S. residents –Â I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
by e-Patient Dave | Jan 13, 2014
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was...
by e-Patient Dave | Jan 1, 2014
The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to...
by e-Patient Dave | Dec 19, 2013
As we’ve said endlessly here (and in Washington), one of the key enablers of better healthcare is access to information. For that subject there’s no more important job in the world than America’s National Coordinator for Health IT, who runs ONC...
by e-Patient Dave | Nov 26, 2013
Susannah Fox of Pew Research had an important new study published today about the highest cost part of the healthcare budget: patients with one or more chronic conditions. If you care about the suffering of patients with never-ending conditions or the suffering of the...
by e-Patient Dave | Nov 24, 2013
Update Nov. 26: great news! In today’s NY Times is Gynecologists May Treat Men, Board Says in Switch! Their reason for the change is still totally doctor-centric – even the mention of patients is about “the doctor-patient relationship,” not...
by e-Patient Dave | Nov 8, 2013
Latest update below: 7:39 a.m. ET On my personal site I’m blogging about the second annual Patients In Power conference happening today and tomorrow in Athens, Greece, organized by SPM member Kathi Apostolidis. 7:39 a.m. ET – The European Charter of...
by e-Patient Dave | Nov 3, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Oct 30, 2013
Healthcare IT News is one of the most important – if not the most important – health IT publications. With readership of 54,000, it’s seen by a lot of important “eyeballs,” as they say in marketing. And in this time of critical change, as...
by e-Patient Dave | Oct 8, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Oct 7, 2013
In our society’s work (home page quote: “promoting the concept of participatory medicine”), one thing we do is connect with others in this vast industry. Friendships and alliances are how we spread the word and evangelize our view of the future of...
by e-Patient Dave | Sep 29, 2013
At the extraordinary Stanford Medicine X conference I connected with SPM member Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient and family engagement. We recorded...
by e-Patient Dave | Sep 15, 2013
Monday Sept. 16 is the 2013 Consumer Health IT Summit. That means we, the patients, are the focus – we and our data, of course! – along with the providers (doctors, nurses, practices, hospitals) who serve us. You can watch live, online, without prior...
by e-Patient Dave | Sep 8, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Sep 6, 2013
Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...
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