by e-Patient Dave | Feb 24, 2013
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by e-Patient Dave | Feb 19, 2013
Important quick update – pardon the lack of formatting – I’ll try to clean it up later – ———- Forwarded message ———- From: Retraction Watch Date: Tue, Feb 19, 2013 at 4:22 PM Subject: [New post] Does...
by e-Patient Dave | Feb 18, 2013
This is the big update to our preview post last November. There’s a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We’ve documented the progress: 2009: Susannah Fox was on NPR’s Morning...
by e-Patient Dave | Feb 17, 2013
Cross-posted from Regina’s own blog. Please vote for her Shorty Award nomination by posting a Tweet here through Monday, Feb 18. She only needs about 80 votes to get into the top six finalists in #activism. I’m cross-posting this for two reasons. First, in...
by e-Patient Dave | Feb 7, 2013
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s...
by e-Patient Dave | Feb 6, 2013
Major typo fix, 3:23pm – “they’re giving” is not same as “they’re given”! Sorry. This note arrived today from the Institute of Medicine. I’m in DC at the moment, at a big briefing by the Health Affairs policy journal...
by e-Patient Dave | Feb 6, 2013
Next guest post by SPM member and former health system executive @NickDawson. Ilya Prigogine received in the Nobel Prize in Chemistry in 1977. His work largely focused on Non-equilibrium thermodynamics. What he found is as fascinating for scientists and non-scientists...
by e-Patient Dave | Feb 3, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Feb 2, 2013
Guest post by SPM member @NickDawson, a former health system executive now focused on patient experience, staff happiness and healthcare innovation. He works for Frontier Health in Richmond, Virginia. There’s a moment where something changes direction,...
by e-Patient Dave | Jan 27, 2013
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today – lack of coordination – and makes a compelling case for patients and...
by e-Patient Dave | Jan 18, 2013
SPM member Marge Benham-Hutchins (see her December post) spotted this item. It’s a vital point for patient and family awareness, leading to patient engagement – patients as responsible drivers of their health. I added the italics below. From a recent...
by e-Patient Dave | Jan 17, 2013
On Twitter @HCI_GPerna just posted that the Dept of Health & Human Services has announced the long-awaited rule changes to HIPAA, the Health Insurance Portability and Accountability Act of 1996. These are the changes to implement HITECH, the 2009 stimulus bill...
by e-Patient Dave | Jan 17, 2013
It’s less common today but people used to think empowered patients were anti-doctor. One part of our response on this blog was to point out the many clinicians who are e-patients themselves, as in Let’s hear it for the d-patient e-patients (with dozens of...
by e-Patient Dave | Jan 14, 2013
The report was issued overnight – see Susannah’s post here about it, media coverage (via Google), and blogs. I’m stealing some Susannah Fox thunder here because I can’t wait, and you should carve out a spot in your calendar...
by e-Patient Dave | Jan 8, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Jan 6, 2013
Addition Oct 2014: added link to the Reproducibility Initiative, now at validation.ScienceExchange.com Correction Monday morning: the project is called the Reproducibility Initiative, not Project. Also, note that we got a comment from co-founder Elizabeth Iorns...
by e-Patient Dave | Jan 2, 2013
Jan. 3 update: See important update at bottom – the site owner has identified himself. I’m extremely troubled by this development, so much so I’m stopping a tight-deadline task to write this. Let’s hope that as things unfold this will resolve....
by e-Patient Dave | Dec 31, 2012
Some things are what they call “evergreen” – persistent value, never out of date. Two come together for this year-end post. __________ A lot’s changed since our society was formed in 2009, but year after year a core skill for participatory...
by e-Patient Dave | Dec 30, 2012
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...
by e-Patient Dave | Dec 29, 2012
Merle Bushkin of MedKaz (a secure PHR device) is extremely unhappy with the reality that although we’ve spent years and billions on EMR adoption, the practice of healthcare hasn’t transformed yet. In “Where’s the urgency, the anger, the...
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