e-Patient stories | SPM Blog

A Family’s Guide to the ICU: Series Introduction

by e-Patient Dave | Jul 15, 2019 | 0 comments

My name is Narinder Singh. I joined SPM in April. That’s my mom in the photo above. Last year our family was caught by surprise when she had a completely unexpected and dramatic ICU stay of three months. We had a lot to learn fast and too little help, and when...

#SPM2018 speakers @_AngelaKennedy and daughter Grace: “Personal Health Information is Saving Grace”

by e-Patient Dave | Oct 5, 2018 | 0 comments

Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....

Skeptics ask why patients would even WANT their medical images. We asked on Facebook.

by e-Patient Dave | Jun 5, 2018 | 23 comments

Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post! Here’s their...

The Heart Attack That Wasn’t

by Carla Berg | Feb 14, 2018 | 7 comments

Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an...

Care Coordination, The Holy Grail of Good Medicine

by Nancy Finn | Oct 24, 2017 | 0 comments

Appropriate patient care revolves around a team of individuals that includes the patient, a variety of clinicians and other providers, caretakers and patient advocates. The members of this team must collaborate to ensure that the best possible decisions are made on...

My Mother’s Scrap of Paper

by Linda Stotsky | Sep 27, 2017 | 2 comments

I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –...

Health Partner or Care Partner?

by Danny van Leeuwen | Aug 28, 2017 | 1 comment

Two stories for you: More than 20 years ago my oldest son was training to do development aid work in the bush of Zimbabwe. As part of his team training, he invited me to come give a talk about health with his team. I was a nurse and a paramedic at the time. I did the...

Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care

by Ileana Balcu | Feb 11, 2017 | 0 comments

This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on...

Angela Lundberg: Health Insurance & RA: Dangerously Uncovered

by Ileana Balcu | Jan 10, 2017 | 0 comments

Member Angela Lundberg’s blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. Health Insurance & RA: Dangerously Uncovered Besides the benefits she...

Thanksgiving Letter to my Doctor

by Ileana Balcu | Nov 23, 2016 | 3 comments

Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks...

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