by Narinder Singh | Jul 16, 2019 |
This is Part 1 of a four part series, introduced yesterday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [Download the Complete Family’s Guide as a PDF] Even the air in the waiting... by e-Patient Dave | Jul 15, 2019 |
My name is Narinder Singh. I joined SPM in April. That’s my mom in the photo above. Last year our family was caught by surprise when she had a completely unexpected and dramatic ICU stay of three months. We had a lot to learn fast and too little help, and when... 
by e-Patient Dave | Oct 5, 2018 |
Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here.... 
by e-Patient Dave | Jun 5, 2018 |
Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post! Here’s their... 
by Carla Berg | Feb 14, 2018 |
Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an... by Nancy Finn | Oct 24, 2017 |
Appropriate patient care revolves around a team of individuals that includes the patient, a variety of clinicians and other providers, caretakers and patient advocates. The members of this team must collaborate to ensure that the best possible decisions are made on... 
by Linda Stotsky | Sep 27, 2017 |
I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –... 
by Danny van Leeuwen | Aug 28, 2017 |
Two stories for you: More than 20 years ago my oldest son was training to do development aid work in the bush of Zimbabwe. As part of his team training, he invited me to come give a talk about health with his team. I was a nurse and a paramedic at the time. I did the... 
by Ileana Balcu | Feb 11, 2017 |
This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on... by Ileana Balcu | Jan 10, 2017 |
Member Angela Lundberg’s blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. Health Insurance & RA: Dangerously Uncovered Besides the benefits she...
Web introduction to a crowd-sourcing platform for COVID-19 “information therapy”March 19, 2020
COVID-19 information resources: Peter Elias MD and othersMarch 17, 2020
Long-awaited US rules on data access and information blocking are outMarch 9, 2020
Three minute patient video nails the suffering from information blockingMarch 9, 2020
“Help me see the dragon I’m slaying”: pathologists meeting directly with patientsFebruary 28, 2020
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