by e-Patient Dave | Jun 5, 2018 |
This is so exasperating. For years we at the Society for Participatory Medicine have been among the leaders of the movement for patients to have access to their medical records, in EMRs and everywhere. We’ve blogged repeatedly (and advocated in DC) about patient... 
by Carla Berg | Feb 14, 2018 |
Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an... by Nancy Finn | Oct 24, 2017 |
Appropriate patient care revolves around a team of individuals that includes the patient, a variety of clinicians and other providers, caretakers and patient advocates. The members of this team must collaborate to ensure that the best possible decisions are made on... 
by Linda Stotsky | Sep 27, 2017 |
I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –... 
by Danny van Leeuwen | Aug 28, 2017 |
Two stories for you: More than 20 years ago my oldest son was training to do development aid work in the bush of Zimbabwe. As part of his team training, he invited me to come give a talk about health with his team. I was a nurse and a paramedic at the time. I did the... 
by Ileana Balcu | Feb 11, 2017 |
This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on... by Ileana Balcu | Jan 10, 2017 |
Member Angela Lundberg’s blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. Health Insurance & RA: Dangerously Uncovered Besides the benefits she... 
by Ileana Balcu | Nov 23, 2016 |
Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks... by Ileana Balcu | Sep 29, 2016 |
Beautiful and comprehensive blog post from Regina Holliday about different types of patient advocates, the evolution of the patient as speaker, consumer, policy-igniter and her own work.... by e-Patient Dave | Aug 8, 2016 |
We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean...
What Healthcare Can Learn from Mr. RogersAugust 7, 2018
Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”August 5, 2018
Announcing SPM’s new Doc Tom Awards. Nominations are open!August 3, 2018
Study: Engaging patients in co-design works. Join us at our conference!July 26, 2018
Patient Ownership of Data?July 22, 2018
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