by Eric Bersh | Jan 4, 2023
A few years ago I learned that non-profit organizations MUST have a Scientific or Medical Advisory Board in order to be listed on NIH’s website as an informational resource for patients. Likewise, many foundation grants require a non-profit to have a similar...
by John Novack | Dec 6, 2022
Editor’s note: In his new book, Open Heart, Warrior Spirit: A Man’s Guide to Living With Cancer, patient activist Trevor Maxwell explains why men go into their “man caves” when facing a cancer diagnosis; provides tips for avoiding that dangerous isolation;...
by Eric Bersh | May 5, 2022
We cannot always choose what happens to us in life, but we can choose how we respond and handle it. Take for example, the time that I had a physical examination with my relatively new primary care physician. They did blood work and I received a report, along with a...
by Richard G Kahn | Jul 29, 2021
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog post,...
by Tamika Felder | Jun 16, 2021
Stories have the power to punch you in the gut. Of course I mean figuratively, but in many real ways, literally too. I literally feel pain–coupled with inspiration–when fellow cancer survivors share their experiences, struggles and fears. Stories have the...
by Danny van Leeuwen | Jan 12, 2021
Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...
How All of Us in Healthcare Can Close the Empathy GapJanuary 11, 2023
Health Literacy Requires Talking with People – Not PatientsDecember 14, 2022
Patient Design: The Importance of Including Patients in Designing Health CareNovember 30, 2022
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