e-Patient stories Archives - Page 3 of 29

A Family’s Guide to the ICU: Series Introduction

by e-Patient Dave | Jul 15, 2019

My name is Narinder Singh. I joined SPM in April. That’s my mom in the photo above. Last year our family was caught by surprise when she had a completely unexpected and dramatic ICU stay of three months. We had a lot to learn fast and too little help, and when...

#SPM2018 speakers @_AngelaKennedy and daughter Grace: “Personal Health Information is Saving Grace”

by e-Patient Dave | Oct 5, 2018

Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....

Skeptics ask why patients would even WANT their medical images. We asked on Facebook.

by e-Patient Dave | Jun 5, 2018

Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post! Here’s their...

The Heart Attack That Wasn’t

by Carla Berg | Feb 14, 2018

Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an...

Care Coordination, The Holy Grail of Good Medicine

by Nancy Finn | Oct 24, 2017

Appropriate patient care revolves around a team of individuals that includes the patient, a variety of clinicians and other providers, caretakers and patient advocates. The members of this team must collaborate to ensure that the best possible decisions are made on...

My Mother’s Scrap of Paper

by Linda Stotsky | Sep 27, 2017

I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –...