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Dr. Val Jones Leaves Revolution

Although not explicitly mentioned, it appears Dr. Val Jones, the Senior Medical Director at Revolution Health, has quietly left the company and is starting her own venture, Better Health. You can read an interview where she discusses her new life online, with not a...

Cloud computing puts your health data at risk?

In today’s Windows Secrets, Stuart Johnston writes about the pros and cons of having our health data out on the Internet, as proposed by Google Health and Microsoft HealthVault. Quotes: “Selling prescription records is a multibillion-dollar-a-year...

Comarow on Quality

Avery Comarow’s blog on USNews.com is my personal find of the week. I once worked with Avery, so I know he tells it like it is, and he’s tackling an important topic. Check out his take on the CMS Hospital Compare page: Hospital Deaths Go Public....

Now THAT’s an e-participating patient

From ScienceRoll: “Jan Martens at Medblog.nl … mentioned Maarten Lens-Fitzgerald who should be considered one of the best examples of e-patients in the world. See why…” Hey Jen McCabe Gorman, what is it with the Dutch?  

Pez Dispensers = Inspiration

Check out the Diabetes Mine Design Challenge winners for examples of how e-patients can help heal health care, as we like to say around here. I’m especially taken with the Pez dispenser-inspired Maximum Slide gadget, but then again I may just be charmed by the...

Welcome, “Reasonably Well”

The Reasonably Well blog is authored by Julia Oleinik, a patient of Sjogren’s Syndrome, a progressive autoimmune disease. She read the e-patient white paper (have you?), and she gets it. Welcome to the family!  

How do US journalists cover medical news?

A really interesting evaluation of 500 medical stories from the press covering treatments,tests, products & procedures is available at PLoS. This should be required reading for anyone interested in the power of e-patient groups, since these groups very often...

Nice Review at Consumer Reports

Orly Avitzur, a neurologist and e-Patient savvy doc, is now a medical editor at the Consumer’s Union/Consumer Reports. She’s written an excellent short review of some of the important developments in what we’ve come to call participatory medicine...

Unimplementable standards: seedie.org

A tip of the e-hat to Dr. Ted for this *splendid* reading for people involved in EMR/PHR: SEEDIE: Society for Exorbitantly Expensive and Difficult to Implement EHRs. Don’t miss the sub-pages.  

Here Comes Everybody

Over on the Inkwell, our own Jon Lebkowsky is interviewing Clay Shirky, author of “Here Comes Everybody.” My favorite quote so far: “The places where experts matter and flourish are places where it is expertise, rather than authority (which is to say...

Patient Activism

If you have doubts about the impact of social media on health care, please read this 2005 post on The Health Care Blog about a grandmother’s campaign on behalf of her grandson. There’s a lot of heart (and snark) in the comments.  

Um, let’s start by just being polite

Maybe it’s just me, but this one’s a little astounding. According to Paul Levy’s blog, a Perspectives column in the New England Journal of Medicine “suggests that doctors enhance their relationship with patients when they deal with [them] in a...

No Secrets

Ted Eytan’s April 16, 2008, iHealthBeat column lays out the benefits of providing real-time, secure access to health records: “As our profession understands the benefits of patient partnership better, more medical groups are discovering that there...

Doctors Discuss How to Deal with e-Patients

“A well-educated patient is easier to treat. A badly educated patient is very difficult to treat.” This and other choice quotes you’ll find in, How to deal with the digitally empowered patient, a four-doctor roundtable discussion hosted by Scott V....

Patient 2.0

Check out this interview with Matthew Zachary, founder of ImTooYoungForThis (cancer resources for GenX and GenY).  

The Players in the PHR Space

Want to know who wants to be your next personal health record (PHR) provider? Check out this great run down of the current players in the PHR market, along with some insights into what motivates them to be the company between you and your personal health information....

Women Healthcare Executives & e-Patients

e-Patients Scholar, Cheryl Greene presented the e-Patient perspective to women healthcare leaders at X2HN. Her talk titled, Making the Most of Health 2.0, was presented at their annual meeting in San Diego, CA. In the audience was Congresswoman Nancy Johnson....

Medscape Editorial

Check out this video editorial by Dr. Danny Sands entitled “ePatients: Engaging Patients in Their Own Care.” (Note: sign-up is free for site access.)  

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