by e-Patient Dave | May 12, 2020 |
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve... 
by Danny Sands, MD | Apr 9, 2020 |
Prologue from Dr. Sands: I trained in clinical informatics because of my belief that we needed to better empower healthcare professionals with information technology so they could take better care of patients, and spent many years creating and implementing these... 
by e-Patient Dave | Mar 9, 2020 |
The long-awaited rules on data access have been published this morning from two key parts of the US Department of Health & Human Services. I’ll expand this post with more links as we digest what’s been offered and will unfold in the coming week. The... 
by John Grohol | Jan 28, 2020 |
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps... 
by e-Patient Dave | Jan 26, 2020 |
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive... 
by e-Patient Dave | Nov 24, 2019 |
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she... 
by e-Patient Dave | Nov 1, 2019 |
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s... 
by e-Patient Dave | Apr 11, 2019 |
What if you hired a financial manager to handle your money – a trusted professional, like that guy above – then discovered they didn’t know what they were doing, and your records were a mess? How would you feel? That’s pretty much what happened... 
by e-Patient Dave | Apr 10, 2019 |
It’s a big anniversary, this spring – this week, even. Ten years ago the whole issue of personal health data exploded into the headlines. It was about something I wrote here, not having a clue it was any kind of a big thing, but it ended up on the front... by e-Patient Dave | Jan 7, 2019 |
On Facebook last Friday our member Carla Berg Nelson posted briefly about a new Psychology Today blog post, Data: the New Window into Humanity, by John Nosta. She tagged a number of other members (and non). I know and respect Nosta from his days creating a LinkedIn...
Checking the Compass of Participatory MedicineJuly 10, 2020
The Health Story Collaborative & the Power of Healing NarrativesJune 10, 2020
Haiku as a path to resilience in the COVID-19 era: #HaikuChallenge20June 6, 2020
Courage and resilience help face the uncertainty of coronavirusMay 29, 2020
SPM & Health Story Collaborative Join Forces: Please Share Your Stories During the PandemicMay 19, 2020
Recent Comments