by Casey Quinlan | Nov 16, 2018 |
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here’s the full version of the... 
by e-Patient Dave | Oct 15, 2018 |
Here’s the last in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Last chance: register here.... 
by e-Patient Dave | Oct 5, 2018 |
Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here.... 
by e-Patient Dave | Sep 28, 2018 |
Here’s the latest in a series of posts by and about the outstanding topics we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. (Our #SPM2018... 
by e-Patient Dave | Sep 25, 2018 |
Here’s the latest in a series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. Healthcare... 
by Danny van Leeuwen | Jul 22, 2018 |
Do you care about health data ownership and want to stay abreast of national initiatives to wrestle with and solve ownership issues? If so, this post is for you. What does it mean to own my health data? Is it like owning my car or my house? Is it like a copyright? Do... 
by Michael Millenson | Jun 27, 2018 |
This is the second of two posts about this important policy issue regarding portability of our medical records. The first provided background, with link to a PDF of the comments SPM submitted, largely authored by Michael Millenson, who provides this essay for context.... 
by e-Patient Dave | Jun 27, 2018 |
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon... 
by Danny van Leeuwen | Jun 10, 2018 |
SPM advocates vociferously for patient ownership of their own data. Success would be revolutionary. But revolutions do not suddenly appear. They result from persistent long-term effort, strategy, and tactics. Key milestones often only appear in hindsight. The... 
by e-Patient Dave | Jun 5, 2018 |
Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post! Here’s their...
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