By e-Patient Dave | June 27, 2018
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon... 
By Danny van Leeuwen | June 10, 2018
SPM advocates vociferously for patient ownership of their own data. Success would be revolutionary. But revolutions do not suddenly appear. They result from persistent long-term effort, strategy, and tactics. Key milestones often only appear in hindsight. The... 
By e-Patient Dave | June 5, 2018
This is so exasperating. For years we at the Society for Participatory Medicine have been among the leaders of the movement for patients to have access to their medical records, in EMRs and everywhere. We’ve blogged repeatedly (and advocated in DC) about patient... 
By e-Patient Dave | April 27, 2018
In the interest of speed, this is a quick note for interested parties – apologies for minimal explanation. 90 minutes from now, 2:30 pm ET on Friday 4/27, at the Health Datapalooza conference in DC, people will gather in an “unconference” session to... 
By Jane Sarasohn-Kahn | March 20, 2018
An important post from long-time SPM member (and former board member) Jane Sarasohn-Kahn (@HealthyThinker), cross-posted from her widely read Health Populi site. (The screen capture above is from this BBC article, which came out hours after Jane’s post below.)... 
By e-Patient Dave | November 29, 2017
I’m way late in blogging this – too much travel and jet lag – but WOW was our Society’s first conference on October 25 a breakthrough event! Titled ““Participatory Medicine: Transforming the Culture of Care” (web page), it produced... 
By Linda Stotsky | September 27, 2017
I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –... 
By e-Patient Dave | June 21, 2017
As his TEDMED profile says, Dr. Isaac (Zak) Kohane, MD, PhD, co-directs the Center for Biomedical Informatics at Harvard Medical School. He’s a long-time believer in the power of well managed information to help create well managed care. Many members of SPM got... By Ileana Balcu | June 19, 2017
Lawrence “Larry” Weed (born December 1923, died June 3, 2017) was an American physician, researcher, educator, entrepreneur, and author, who is best known for creating the problem-oriented medical record as well as one of the first electronic health records.... 
By Ileana Balcu | February 11, 2017
This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on...
Call to action! Second annual Doc Tom award nominations now being accepted!September 9, 2019
A Family’s Guide to the ICU, Part 4: The Human Aspect of CareJuly 19, 2019
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