by e-Patient Dave | Mar 9, 2020
The long-awaited rules on data access have been published this morning from two key parts of the US Department of Health & Human Services. I’ll expand this post with more links as we digest what’s been offered and will unfold in the coming week. The...
by John Grohol | Jan 28, 2020
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps...
by e-Patient Dave | Jan 26, 2020
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive...
by e-Patient Dave | Nov 24, 2019
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she...
by e-Patient Dave | Nov 1, 2019
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s...
by e-Patient Dave | Apr 11, 2019
What if you hired a financial manager to handle your money – a trusted professional, like that guy above – then discovered they didn’t know what they were doing, and your records were a mess? How would you feel? That’s pretty much what happened...
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