by Danny Sands, MD | May 6, 2024
I care for a diverse population of individuals in my primary care practice. It’s hard enough to motivate behavior change in people who have little motivation, but it’s even more challenging when it’s hard to connect with them because of cultural disparities....
by Brenda Merriweather | Apr 26, 2024
During my doctoral study in nursing practice a couple of years ago, I learned about a champion of nursing informatics, Dr. Nancy Staggers. Dr. Staggers assisted in developing the American Nursing Association’s Scopes and Standards of Practice. She also contributed to...
by e-Patient Dave | Nov 20, 2023
I’m working on lots of things about generative AI in healthcare, because among other things, “GenAI” is incredibly empowering and liberating for e-patients. For kicks I decided to ask GPT-4 what it thinks participatory medicine is. Here’s its...
by e-Patient Dave | Sep 26, 2023
I had an idea last week and just tried it. ChatGPT is awesome at summarizing things, but could it handle medical notes? They’re complicated. It worked! I took the visit notes from my last doctor appointment (the whole big, long, detailed thing) and asked...
by Daniel Halpren-Ruder, MD | Oct 25, 2021
We Have Failed The Society for Participatory Medicine was founded in 2009 to transform the culture of care. A few years later, a comprehensive history of the forces that resulted in the creation of the Society was presented here by Millenson: Spock, feminists, and...
by Danny van Leeuwen | Nov 30, 2020
Healthcare activists need communities to affect change. Considering public-private partnership with NCQA’s Digital Measurement Community with Ben Hamlin. Proem Activists seek to inform and nudge change for the better – political, social, cultural, healthcare,...
by e-Patient Dave | May 12, 2020
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve...
by e-Patient Dave | Nov 24, 2019
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she...
by e-Patient Dave | Apr 11, 2019
What if you hired a financial manager to handle your money – a trusted professional, like that guy above – then discovered they didn’t know what they were doing, and your records were a mess? How would you feel? That’s pretty much what happened...
by e-Patient Dave | Apr 10, 2019
It’s a big anniversary, this spring – this week, even. Ten years ago the whole issue of personal health data exploded into the headlines. It was about something I wrote here, not having a clue it was any kind of a big thing, but it ended up on the front...
by Sarah Krüg | Mar 12, 2019
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half...
by Danny van Leeuwen | Jul 22, 2018
Do you care about health data ownership and want to stay abreast of national initiatives to wrestle with and solve ownership issues? If so, this post is for you. What does it mean to own my health data? Is it like owning my car or my house? Is it like a copyright? Do...
by e-Patient Dave | Mar 6, 2018
UPDATE FOR ATTENDEES: Try to arrive 10 minutes early — 10:50 am — to get oriented. On arrival a host will scan your badge and point you to the big round “Discovery desk” where we’ll gather. We’ll talk a bit for 10 minutes, then...
by e-Patient Dave | Jun 21, 2017
As his TEDMED profile says, Dr. Isaac (Zak) Kohane, MD, PhD, co-directs the Center for Biomedical Informatics at Harvard Medical School. He’s a long-time believer in the power of well managed information to help create well managed care. Many members of SPM got...
by Ileana Balcu | Jun 19, 2017
Lawrence “Larry” Weed (born December 1923, died June 3, 2017) was an American physician, researcher, educator, entrepreneur, and author, who is best known for creating the problem-oriented medical record as well as one of the first electronic health records....
by Ileana Balcu | Jun 8, 2017
Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...
by Danny van Leeuwen | Nov 11, 2016
On September 26, 2016, President Obama recognized Health IT Week by saying: We have worked to clarify an individual’s legal right to access their health information and transmit it where they choose—whether it’s to a family member or to their smartphone. These efforts...
by e-Patient Dave | Jul 31, 2016
A large part of the Society for Participatory Medicine’s work is culture change, and that requires pointing to the cultural roots of today’s situation, so that well-meaning people today can understand how we got here, and how absurd today will look in the...
by Peter Elias | Jul 7, 2016
Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here. Particularly relevant is his Proposal for a TRULY patient-centered medical record, The experience he recounts here, as a...
by e-Patient Dave | Jun 17, 2016
This may be THE most important, articulate speech I’ve seen about profound progress in patient power – and why it matters. This talk by Mark Wilson about OpenAPS, at last Friday’s DiabetesMine D-Data ExChange 2016, contains a metaphor that’s...
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
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